You are worth it

Sometimes life is a roller coaster, only when it comes to Multiple Sclerosis it can mean that literally. Vertigo is something I’ve fought from the start of diagnosis. Some days having the room spin around, shift up and down, and move on me is manageable. Other days, simply sitting on the couch can trigger an entire tsunami of waves.

The uncertainties of just that one symptom can be a lot to handle. Now add to that all of MS let alone all of life and, well…let’s just say some day I would rather stay in bed hiding under the covers than facing the day. Being overwhelmed every move you make is not something anyone wants. It takes a strong person to face a life with MS. It’s definitely not a disease for wimps.

When you get to the point of feeling as if you are drowning in a sea of symptoms, doctor appointments, tests, changes, meds and even health choices, sit down and take a breath. You have to pause at those times in order to make wise decisions and to keep from going crazy.

Making decisions is exhausting work. It really is. There’s a ton of information to weed through, side effects to consider, lifestyle changes to manage, finances to shuffle, and schedules to maintain. Be sure the decisions you make today about managing your MS is what’s best for you, not just because someone online said so or a friend pressured you into it. You have to think of you and your needs…and the you in the future.

You are the one in charge of your life, not MS, a doctor, your spouse or anyone else. Take the time you need to make informed decisions, then when you’re ready…go for it. So  many times we push ourselves too fast and too hard then find ourselves sitting in a puddle of regrets in the middle of the kitchen floor.

Today, I want to encourage you to pause and reflect on all you are doing in life to be sure it’s what’s best for you. If you need to weed some things out…do it. Quit trying to prove how strong you are. You are already strong so there’s nothing to prove. You are strong even when you feel you are at your weakest, even when all you can do is cry, even when you are overwhelmed with symptoms and a life of change, even when decisions are tough.

Pause today for yourself. You are worth it!

MS Gets on My NervesMS WarriorMS Superhero  

About the Author
About the Author
Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

13 replies
  1. Tossa Roman says:

    Thanks Penelope! Your words are always spot on. Thank you, once again, for giving me “permission” to pause. You always show up on my feed when I hit those valleys. ♡

  2. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    I can understand that. It’s a bit like being drunk as I had a strange experience when I was younger. After having a ‘drink’ on a Wednesday night the next thing I knew was that I was 40 miles away from our city heading for a little town in North Canterbury. Now that’s strange because I should have been at work and not anywhere near where I was. Now that is not MS but something similar. So I survived that and hopefully do that to MS as well.

  3. Dianne
    Dianne says:

    Penelope that’s exactly where I’m at. Because of all the different and new symptoms I had been experiencing last year after living with MS for nearly 20 years I decided that 2016 was going to be MY year. I will focus on me instead of everyone else around me all the time. Sure I will still be the devoted mother, wife and caregiver I am, but my time will be shifted to include my health, fitness and well being in priority to these things. I must make this change as my body has been speaking to me begging to be heard. Well, I’m listening!!! It will be tough to make these shifts and changes but I know I can do it. One day, one hour at a time.

  4. Hope Elaine Demos says:

    Me too. Thanks so much! Some days, I am in complete denial on how much this illness has affected me physically. I got stuck in the driveway trying to take the kiddo to animal camp. I was able to get out When I got back I got stuck again, so I tried shoveling it out and salting it.
    Got it enough to drive into the garage. Then my stubborn butt tried shoveling the driveway! Nope I got extremely exhausted, overheated, shaky and my muscles just are simply too weak. I finally gave up and left it. The guys can take care of. Its really hard for me to admit that I can’t do something, and frustrating!!!! I am self starter , do it yourself- go getter.
    But even the strongest fall victim to this disease. Plus I think I am in a flare up so I will ride it through. It will melt❄❄❄ lol..

  5. Caitlin Anderson says:

    Which might mean part of a day under the covers! Or Netflix binge … Getting my energy ready for adaptive kayaking, or hiking the next day? Or just because? Love the rollercoaster image .. A down day is just getting ready for next hill – an uncertain breRh at top, then, scream, as we go down again! Having fun most of the way …

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