But I read it on the internet…

We live in a society filled with opinions. Opinions about what a person should wear, what they should eat, where they should live and what kind of work they should do. It seems everyone is an expert at everything. You can’t do or say anything today without someone voicing an opinion. (Keep in mind, this post is just my opinion.)

If we spent our time listening to all those voices, we would go mad…absolutely mad. I know people mean well, but the judgmental, know-it-all attitudes have got to go. When I was a healthy person, I would get a lot of opinions thrown at me about how to live my life, but now that Multiple Sclerosis is a part of my life, I find I’m bombarded with even more opinions. Someone once said, “It’s funny how people have strong opinions on things they know nothing about” and that is so true.

There are opinions about what I should eat and what I shouldn’t eat, what meds to take and that I shouldn’t take meds at all, what exercises to take part in, what prayers to pray, and what supplements to take. I’ve heard how everything from bee stings to removal of dental fillings will cure me…after all it was said on the internet. If only I could rub Calamine lotion all over my body while standing on one leg and singing I’m a Little Teapot at the top of my lungs…I’d be cured. Why am I not doing it? I must not really want to get better.

Have you ever wanted to just smack someone like that upside the head? They mean well, but come on. Do we still think as a society that the internet is a valid, 100% reliable source of information? It’s basically all opinion. You can find any source you want to back up your idea if you look hard enough. If you choose to believe the sky to be green and want to prove that point, I’m sure you could find a website out there that would validate it for you.

Living with Multiple Sclerosis is not easy and we all want a cure to be found, but we don’t need to be criticized or judged by others for how we choose to deal with the disease all because of something found online. There are different types of MS, differences in the people living with it and different progressions that happen. That’s a lot of differences to try and cram into one online solution.

How about this? Do your best to shut out all the opinions flying around you and choose to simply enjoy life. That way you can cut out the stress that comes with all those opinions and can use your time instead to create amazing memories with the people you love. After all, that’s what really matters anyway.

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About the Author
About the Author
Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

9 replies
  1. Bobbi
    Bobbi says:

    After a misdiagnosis in 2004 by one neurologist, I was then told by my second neurologist (same practice) in 2007 that I did in fact have MS and to go home and look it up on the internet if I wanted to know what MS was. I was then sent to the “MS nurse” a week later to tell me what MS was but all she told me was this MS med would be the “right one” for me. Look it up on the internet…yeah right! I scheduled an appointment at an MS clinic and I have been fine ever since! People do mean well but don’t believe everything you read! Thank you for your post. It really hit home.

  2. Chris
    Chris says:

    Thanks Penelope for writing this post! Let’s all agree to do what is the best for ourselves….and let others do what is best for them. As for the “expert” advice given on the internet….YIKES! Do your due diligence folks!

    Love your last paragraph! Make great memories with those you love!! Have a blessed day and New Year!!

    Blessings! Chris

  3. Stephanie Gonzalez says:

    I’m getting a lot of flack from my doctor because I would prefer to try more homeopathic routes first. My body does not react well to meds, never has, why on earth would I want to start with the heavy hitters? There are actually many reasons I avoid pills unless I’ve tried everything else first. But that’s neither here nor there.
    He suggested I find another doctor, and I’m prone to agree.

    I should probably add it’s been difficult getting answers, like what type of MS, or the stage I’m in. All I really know is I have it, and it looks like I’ve had it for 10 years now.

  4. Sabina
    Sabina says:

    MS is NOT a single disease, and cannot be treated as such. It is as diverse and multidimensional/multifaceted as is possible in Nature. Some treatments work for some people, others work for others and in some cases, nothing at all works. Be careful what you try.

  5. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    This is also a problem for all as the advertising adds go everywhere including this site. Most are easy to see and ignore but some are just devious in their formation so you have to be careful when you see them. I think as you write most of the people who recommend alternative options are well meaning (and possibly ignorant of our problem). There’s no harm if can be found out it’s not garbage but some hide it so well and can fool people. Just be aware and make sure it is for you (really!).

    When the MIS416 trial was advertised I did a bit checking before I signed up for it and it proved useful for me (and others) so it was useful. It has been suggested to to change my diet (for it helped me) and I am aware that it can help some people but we are all different so not all treatments are for all.

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