You’re not alone in this messy world of MS

When I was little I loved going outside right after it rained so I could play in the mud. I would make castles with moats and cities with rivers. So many creations of mine where built in those moments. I would let my imagination run wild as the mud squished between my fingers and toes.

It didn’t make my mother all that happy though, especially when I would walk inside with muddy feet and hands leaving a trail of mud on the floor for her to clean up. And my clothes…many times they would be forever stained with traces of the mud that would never come out. I guess you could say I would make a mess of things. Messy body, messy clothes, messy floor, and when it was all over, a messy bathroom.

Messes happen all the time. You know what else is messy? Life! It’s filled with twists and turns and unexpected surprises. Add Multiple Sclerosis to the mix and you end up with not just a muddy mess but confused chaos.

MS brought a bunch of messiness into my life. Now don’t get me wrong, my life was already messy but I really didn’t need anything more muddling things up. Aren’t I lucky? MS picked me out of the thousands it could have chosen. It picked you too. And here we sit…a rumpled, goofed up, jumbled mess.

No one chooses to go through life different, in pain, struggling from moment to moment, and uncertain of tomorrow. No one wants to pack up their dreams, throw away their careers, and say goodbye to abilities they know they will need in order to get through their day. No one dreams of a life with MS.

It choses us and there’s nothing we can do about it except keep on living. That’s a choice, you know?! Living in spite of the mess surrounding you is a choice. It’s not an easy choice, but it’s a choice.

This falling apart business is not all it’s cracked up to be. Life is messy. It changes you. It’s humbling and eye-opening. Sometimes we have a hard time trying to get it all together. But I hope at least it makes you a more compassionate person towards others. I know it has for me.

Make today a good day. I don’t mean a mess free day…just a good day. You’re not alone in this messy world of MS. Let’s muddle along together through this crazy mess of a life. I think you and I, we’re doing okay…all things considered!

MS Gets on My NervesMS WarriorMS Superhero  

About the Author
About the Author
Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

11 replies
  1. Aileen Brown says:

    I have a friend addicted to Facebook but I only check mine every day for your posts because I know I will either get words if wisdom from someone who knows what they are talking about or a giggle some days you give us both thanks from a very greatful warrior

  2. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    I try not to get ‘messy’ but that is who i am and in every part of me. I know it’s fun and highly enjoyable for some and I respect all for it. Like I have written I have a good household and I help them as much as I can and they help me. I have had to also change (or modify) my thinking to accept help from anyone that I didn’t have to before MS and it was difficult but I got there considering the problems relating to MS.

  3. Hope Wissel
    Hope Wissel says:

    Just diagnosed at 58 and struggling. The pain isn’t bad on most days but not remembering is what is killing me. I wake up some days with a blank slate of what went on the day before. Feel like I am out of the loop on so many things. I have only been married for 4 + years and hubby is struggling too. He says we are learning this together but it is hard on him. He has heart and other health issues so I don’t want to stress him out either. Feeling very alone on most days despite a full life of work, a business and family.

    • Rodger Ashton-Smith
      Rodger Ashton-Smith says:

      Thanks Hope, I know what you are writing about. I had long memories that disappeared too, but being on MIS416 brought them all back again. It has been good and efresing when my mobility is getting worse. Dreaming is also getting better as well.

  4. Deborah Sylvester says:

    Each day we may face new challenges, but we do it together here. I for one grow in gratitude each day for the love, support and compassion shown by all with each post. This is a great place to see we never walk alone and that others can gain from what we learn here.

  5. Juana Driver says:

    You have nailed it again! Thanks for words in print of our daily experience! February is my anniversary of MS changing my life. It’ll been 33 yrs wow! It definitely has been a journey! So thankful for uplifting words!

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