Today is one of those days I am forcing myself to get out of bed and get dressed because I simply have no other option. It’s an “I have to get up” kind of day. There are things to do that simply won’t wait for Multiple Sclerosis to behave or for someone else to do them.
Trust me, if I had a choice I would stay in bed. My weakness today is beyond weak…it’s weaker than weak…it’s “I just ran an uphill marathon while pushing a boulder for two days with no sleep” kind of weak. I can’t just start my body moving in hopes that the rest of me will catch up. Oh, if only that were the case, but MS doesn’t seem to work that way.
Those of us living with MS do a lot of things that our bodies don’t like. Many times we drag it along kicking and screaming the entire time we are up and about because, well, life goes on…even with MS. It’s not like we can call a time-out or ask for a day off. Wouldn’t that be nice?!!
Most people can’t see the things we endure as we head in to work every day exhausted or the weakness and pain we go through as we run a few simple errands begging for the day to be over. We drag MS around with us everywhere we go because we have no other choice. It won’t get out of our way, and there’s no way around it. In order to do anything we have to drag it with us along our journey.
We push ourselves and make ourselves keep going because deep down we know that there will come a day when we will no longer be able to keep going. A day when this “thing” we’ve been dragging around everywhere gets too heavy and we can no longer drag it along any more.
That’s the reason we fight. That’s why we get up each day, exhausted and struggling. It’s not because we want to pretend to feel great and plaster on a smile for the world to see. It’s because we want to take advantage of every moment we can, while we can. We want to live life to its fullest creating lasting memories and beautiful moments.
Today belongs to you, even if MS keeps trying to steal all the attention and may have already tried tripping you up. I won’t deny the difficult journey. But regardless of the challenge today, I want you to know that you are not alone in this fight. There are lots of us, thousands, who understand how hard it is to function in an able-bodies world. We not only fight along side you, but we stand with you.
Together, hand in hand, we set out on this journey called today. And together we are going to make it.