I think I lost my cape last night. I woke up this morning almost sure I had left it in the kitchen, but when I went there for my morning coffee…no cape! What am I going to do now? Attempting to go through any day without my superpowers always ends in disaster.
Maybe I left it in invisibility mode and it is really next to me on the floor somewhere. Or I guess in that case, I could actually have it on. Nope…that’s not true because I just ran into the wall as I stumbled over absolutely NOTHING.
I barely even made it to the bathroom without greeting the floor with a hug. I’m so glad I didn’t end up down there. That floor is hard, not to mention dirty. Trust me when I say it doesn’t need a hug right now. If only my cape had a “clapper”, at least then I could locate it on days like today…”clap on, clap off, the clapper.”
Multiple Sclerosis definitely has its own way of messing with plans, schedules, appointments and even preparations. Today was going to be the day I ran a few errands, cleaned the house and made a casserole. So far, it’s my “take a break, rest, take a break, rest” kind of day.
Why do I have such a hard time explaining that kind of thing to others. Things like how I need to rest after taking a shower or that I require a nap after only a few hours of waking up. Many times those discussions are met with disbelief or some type of awkward pep talk that never really gives me any pep.
I don’t know how else to explain to someone that my body doesn’t work like theirs. For whatever reason, people tend to look at me as if I have nothing wrong. Like I’m the same healthy person I was before MS came along. I must really do a good job at making MS look good because I’m constantly being told how good I look.
I wish there was some way to share the painful side of my life with them. Not to have them hurt like I hurt or to be mean in any way, but just so they would stop with the uncalled-for, uncaring, hurtful responses I get when I tell them “I can’t right now.”
I’m not an “I can’t” person, but I do know my body’s limits, and right now my body has told me to sit down and take it slow. I may not have on my cape today to give me the superpowers I need to make it through the day without a break or two or three, but I do know the power of “no” and “not today”. I’ve learned to use those words more frequently. They help on days like today when my cape is nowhere to be found.
I sure hope my cape turns up tomorrow. Maybe it just needed a break and decided to take a vacation. Boy, do I need a vacation. A good, long, kick your feet up, cool breeze blowing, restful, no agenda vacation. My couch vacations just aren’t quite the same.