No one likes to think about where Multiple Sclerosis may lead…not even me. But I can tell you from my own experience, to ignore all possibilities of progression is to live in denial. I lived there my first year after diagnosis. I refused to believe that my life was changing or would keep changing and that I needed to make adjustments.
I know how hard it is to accept that your body is fighting against you. I know how much you want to simply fight back and hope with all hope that you are one of the lucky ones that lives with a benign case of MS. And I commend that attitude. I really do. But denying that MS is a part of your life will only hurt you later on. Refusing to accept what is happening to you is setting yourself up for defeat.
The best way to look at things is from a perspective of…”Yes, I may have MS BUT as long as my body is still able to function, I will live each day to its fullest. Tomorrow that may change and if that should happen, I’m prepared for it. Maybe not mentally. Maybe not emotionally. But I have considered my surroundings and I’ve made preparations for the possibility of a life with limitations due to MS.”
You see, preparing for tomorrow is not living with a negative attitude. It’s living in reality. Somehow, somewhere along the way we have changed the meaning of positive and negative thinking.
It’s not negative to prepare for tomorrow. It’s not negative to talk about MS, your struggles or your pain. It’s not negative to think of ways to adapt your home or even start the process in making those changes now before they are needed. It’s not negative to begin saving up for a possibility of immobility.
Some of us don’t have the luxury to make those preparations because life hit us too hard, too fast. If you can…begin making the preparations now. You will be glad you did. Besides, what could it hurt?
Enjoy today, live in the now, savor the sweet memories you are creating with those you love, but don’t ignore the possibilities of tomorrow…good or bad.