map

Where are you going?

If you enter a start and an end destination into a GPS system, you will be presented with a suggested route for your journey. That suggestion is not permanent. It is merely one option out of hundreds, if not thousands of routes you can take to get to your final destination.

If you decide you want to pass by a certain landmark along the way, or visit every museum in a 15 mile radius of each major city, or take only back roads for a greater adventure, you discover that the trip can easily be re-routed to accommodate those things. The GPS voice immediate starts the rerouting as soon as a change is discovered.

We are each on this journey called “life.” We each have our own roads and our own destiny, after all we are individuals on our own personal journey. The road one person takes is not the same road another person takes. Two different people, two different roads, two different destinies…yet for us, we have this crazy multiple sclerosis thrown into the mix.

What’s interesting to me is that some people with MS try to force others to follow the road they are taking because they think their road is the only road, and dare I say many even think their road is the “right” road to follow in how to live with MS. But that is SO VERY WRONG.

The path each person takes in life is theirs and theirs alone…not anyone else’s. No one can drag you along their road. They can’t carry you piggyback or pull you in a wagon. The road for your neighbor is different than yours. The road for your brother is different too. The road for your friend, yes, you guessed it, it’s different as well. Your journey, your path, your life…all yours.

Yet when it comes to MS, it seems some people think there is only one road to take. Some think it’s a path following a specific diet, others think it includes a certain medication or treatment, and others think it means doing something that has yet to be proven helpful. Opinions run rampant out there and it can confuse even the most seasoned traveler.

But no matter what others think, you have to choose for yourself the road that is best for you. Take the time to be informed, lay out your options, ask questions, plan your route, and step out. Remember, you are the one who has to travel the road in front of you…not anyone else.

Don’t get caught up in following the crowd or constantly detouring in hopes of finding a road without difficulties. Potholes, dirt roads, weather beaten paths and speed bumps are all a part of the MS journey. That’s just how it is. 

Remember…it’s your journey. You get to choose. Don’t let anyone guilt trip you. Be strong and remember to love yourself, and put yourself first and foremost.

MS Gets on My NervesMS WarriorMS Superhero  


About the Author
About the Author
Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

14 replies
  1. Aileen Brown says:

    I remember when I was first diagnosed with PPMS the neurosurgeon said to me that whatever type of the MS you have no two people are the same and that he didn’t have a crystal ball I personally could be in a wheelchair in two years or I could be no worse in 20 well I am worse but not in a wheelchair 3 years down the line altho I have had it longer than that I do what’s best for me and altho not a hero I sure am a warrior

  2. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    That it’s why I prefer maps not GPS systems. The hard cover maps can be seen and all destinations can be viewed and you can chose where you go. It seems like MS has taken over our GPS and set us on a different path. This we have to choose where we go by what we can and need to do.

  3. Erin Haley says:

    I get so frustrated with the people that call MS medications “chemicals” and “poison.” I’m going to use EVERY tool available to me including BOTH traditional and non-traditional treatment methods to fight this monster. I deserve it.

  4. Lola Hale says:

    As for me, I do take medication and I also am a firm believer of making sure to enjoy the things that matter to you most. I enjoy being a mum, although my child is now an adult! I enjoy old books to get lost in, I enjoy classical music and being out in the countryside. I can no longer go on long walks like I used to but that doesn’t stop me and my wheelchair taking notice of the changes in each season. I am genuinely a happy person with a future to hopefully enjoy xx

  5. Leslie Beaver says:

    I keep things simple. And control what I can control. Namely, my overall fitness. As being a lean, fit and strong person can only help when my body is also dealing with MS. I do not waste time and hope chasing a better medication or cure.

  6. George Robertson
    George Robertson says:

    There is an old Buddhist proverb that says; “There are many paths to the top a mountain. The one who runs round telling others that their way is the only way will not make it to the top of the mountain. Choose the path that is right for you.” The wording is wrong but you get the gist. What you say is absolutely right Penelope. Thank you for your words of encouragement. I always look forward to your posts.

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