The truth from a person living with Multiple Sclerosis

This is the truth, the raw truth from a person living with Multiple Sclerosis.

I can not go through life pretending…pretending that everything is okay, because the truth is, it’s not. Let’s get this out in the open instead of constantly whispering about it in the shadows. I am living with a chronic illness. You know it and I know it. It’s not by choice either. I didn’t pick Multiple Sclerosis out of a line up or grab it off the store shelf.

MS is not my fault. I didn’t cause it by the way I eat or the things I do. It’s not payback either for the things I’ve done in my past no matter how bad they may have been. MS picked me out of a crowded room and decided I was the one it wanted to live with. I had no choice in the matter.

The choices I do have are in what methods I decide to pursue in dealing with this illness. Those are my choices though, not yours. Just like this is my body and my life, I am the one making the choice in the way I will seek treatment. You have your own hardships and struggles to face.

I’m sure you wouldn’t like me getting into your business and matter-of-factly pointing out everything you need to be doing regardless of if I even know what I’m talking about.  I’m not here to tell you how to live your life by giving you step by step solutions to all your troubles, so please stop judging me in how I live mine.

It hurts when people refuse to accept my diagnosis. MS is hard enough as it is, I don’t need finger pointing and constant “if you only” statements thrown around. Can we just be honest about everything? Can we face this together so I don’t have to face it alone?

I may be strong, but I’m not bulletproof. I keep going because MS has made me a stronger and better person, but that doesn’t mean I don’t hurt. The truth is I get scared, fail, struggle and even break. I don’t give up though. Nope…not me. I’m a fighter by choice and will keep fighting every day that I live. That’s the truth of my life.

Will you stand with me in the fight? If not, then get out of my way because I’m swinging at anything coming at me.

MS Gets on My NervesMS WarriorMS Superhero  


About the Author
About the Author
Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

48 replies
  1. michelle kenny
    michelle kenny says:

    so true about wot u say bout ms .. I swear I rreally hate it sometimes but wot can u do . u have to b strong and fight it.. I’m 33 with 2 young kids 13 and 8 … no matter wot mood there n or wot needs dotne .. uve try ur hardest and get on with life,,you only live once ..ive had ms 10 years and diagnosed 7 .. going through lemtrada treatment,, rnd 2 in dec this year .. hopefully this one helps xxxxxx

  2. Joyce McManamon says:

    Thanks Penelope for your quotes. I’ve been going though some MS down ward systems. I’ve been diagnosed to PPMS. Tecfidera quite working a year ago causing my walking ability to down hill. My dr wants to put me on Tysibra (even after I got tested for the JR Virus -.01). No way I going on it after I found out I’m positive. So right now, I’m off treatment for right now until I can figure what I’m do & take. OK enough of me. Thanks for all you daily quotes.

  3. Clive Whiteside says:

    Well Said Penelope and it is important that people living with MS stand together many people do not understand what life is like for people it can’t be that bad ? Well unfortunately it can be but by standing together we can support each other in many ways. Penelope your posts are alwsys worth reading over as they say so much about many different issues that effect people with MS thank you for all that you do take care Clive xx

  4. J Nicole Ramirez-Hermann says:

    Thank you for this article, I need to hear that someone else is thinking what I think at times. Stay strong and remember, we are in this together! I also live with MS day in and day out. The struggle is real and I’ve learned the be positive and keep on going.

  5. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Well written Penelope. MS IS NOT OUR FAULT. It started many years ago in a foreign land that we don’t live in. It mystifies the best in the world and is totally random in its’ selection of people.

  6. Kim Diamond
    Kim Diamond says:

    Thank you for writing this. I was dxd in 1985 and had to make my world positive or I would had died.

  7. Meeya
    Meeya says:

    I absolutely LOVE that last sentence in this blog!!!
    Can’t hug you enough for this 🌈
    💜

  8. Kylie
    Kylie says:

    Awesome article. Thank you for ur spoken words…. I wish the non ms people would read this, it might open the heart and minds… sending u much love ❤️

  9. Nicola Day says:

    I’m with you Penelope every step of the way no matter how small that step may be or even if it doesn’t go the way you want we will go there together hand in hand

  10. Jess Broome says:

    Thank you Penelope for all you do. So many times I read your articles and they are exactly what I want to say but can never put into words. You’re an inspiration to all MS warriors!

  11. Christy Armeni Davis says:

    Amen sister!! But please, keep your head up! Despite whatever this MonSter has taken from you, your daily posts inspire people, make me laugh, and gives some justification for the things we feel and go thru that no one else will ever understand!! I share your posts so many times on my own page hoping my friends will read them and maybe, just maybe understand it!! Keep up the good fight!! Love and hugs!! Ps, I deleted so many MS sites on here a long time ago because the content was depressing, yours is the only one I kept because I love your words and positivity and humor!!

  12. Liz Gordon says:

    Don’t you dare give up!
    I’d like to say that saying there are people worse off, minimizes my struggle. So I don’t say that anymore!

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