Surprise…it’s a new Multiple Sclerosis symptom

I love surprises. Well, the good kind of surprises. Things like an unexpected gift, a found 5 dollar bill in your jeans pocket that you didn’t know was there, a pay-it-forward drink at the coffee shop, or waking up to a clean kitchen that you left dirty before going to bed. I welcome those kind of surprises any day of the week.

The kind I don’t like, especially with multiple sclerosis, are the sudden new symptoms that just show up out of the blue and then never go away. That’s always how mine seem to happen.

Since last week a numbness has been increasing across the upper left side of my face and head. It is to the point now that I can’t feel a part of my forehead and even my left eyeball. It’s kind of weird being numb there, almost like someone gave me a shot at the dentist to numb my mouth only they missed my mouth and injected it into my head instead.

Thankfully I can still blink my eye and move the muscles in my face, but it sure is strange to rub that part of my face and not feel it. I find myself being extra cautious when I do so I don’t accidentally scratch myself.

I’m sure the doctor will put me on a round of steroids to slow down the unwelcome activity in my brain that is causing this new surprise. I would love it if MS would just take a vacation already. Better yet, if while on vacation it got eaten by a shark, hit by an astroid and then vaporized in a sudden explosive lava flow. (You can’t be too cautious in wishing for just one disaster to happen.)

But, since that won’t be happening any time soon I am going to have to get used to my new normal. You’d think I’d be used to doing that by now. Trust me, you never get there.

I’ve already had my moment of tears. I seem to always have those moments while in the shower. I don’t know why that happens, but the shower has become my crying spot. Maybe it’s because it’s easier to wash my tears aways and blow my nose with a constant stream of water running down my head.

Regardless of everything happening in my life, I’m going to keep pushing through. You have to do the same thing. Don’t let new progression, new symptoms, or new changes keep you down. There’s always hope.

Even though I don’t personally know you, I can tell you that I genuinely love you and everything is truly going to be okay. Don’t allow yourself to become overwhelmed by the mountain in front of you or the long journey ahead, choose to move forward one step at a time…one moment at a time. You got this. I believe in you, am hoping with you and know that there are better days ahead.

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About the Author

Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

25 replies
  1. Connie Ray
    Connie Ray says:

    I am sorry that you are experiencing a new symptom. You are a lot like me in dealing with something new…try to turn the negative into a positive. Our state of mind matters sometimes more than any medicines we receive. If we remain positive, things usually remain the same or get better, even if for awhile. Penelope, I wish you the best with your treatment and most of all…keep smiling!!☺
    Have a great day!!❤😘

  2. Becky Mendez
    Becky Mendez says:

    Thank you for this post. I needed to hear the words at the end. It is going to be a long road ahead. I will keep pushing through this. One day at a time. That’s all I can do.

  3. Marsha Bell
    Marsha Bell says:

    It’s no surprise to me to have symptoms come and stay though they move around to differs parts of mine. I expect it. I even try to wrestle with the notion that I could be amused or tickled by the least uncomfortable of them…to no avail. Alas, I have but to pray for strength and perseverance. And that is the blessing I receive every minute of ms

  4. Pam Harper Houser
    Pam Harper Houser says:

    Penelope, you’re something. TY for enlightening me today. I’ve started with the numbness of the face, but it goes with the excruciating right arm, shoulder, hand and side pain. They say it’s my bad teeth…which it might be, but I just moved to Michigan this summer and the winter is brutal. Help!! Doctor is increasing muscle relaxants, decreasing other pain narcotics. I’m too old for this!!

  5. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    It reads like leprosy but that does it differently, (or is it MS that does it differently), but I hope you find help with this problem. I guess we all have our own battle, like battling with the ‘Professions’ about what is going on, etc. I will be on a short break from the 8th January for 8 day respite that will help Janice a lot.
    I have found out it’s rather uncomfortable to sit in a wheelchair for a day as I found out recently, so I’m shifting seats to stop this worsering.
    A lighter side is I have found my ipod earphones have got MS. The insulation is cracking up and I have repaired it many times but it still does it. A bit of fun for a change.
    Anyway, to all of you I’ll see you next year.

  6. Glenys Jackson
    Glenys Jackson says:

    All I can do is feel sympathetic for you (or empathetic in a way, because I sometimes feel numb in my lower face but so far the numbness vanishes when I tell it to shoo. And I can’t comment on drugs I haven’t used, but anything that helps… I do find showering one of the most exhausting times of the day, though, feel frustrated by my own inabilities and look forward to its being finished, with me having got.myself dressed and able to flop down in my recliner to rest after all that ‘hard work’. Take care, and know you have many friends out here being encouraged by you and keeping you in prayer!.

  7. Tiffany Lanthier
    Tiffany Lanthier says:

    Awesome once again, it seems like your actually living in my body or in my house to see me cause you really share stuff that is happening to me and I can’t always find the words to express myself, so once again THANK YOU Penelope 😘 Hugs your way…

  8. Stephen
    Stephen says:

    Maybe I should consider myself lucky that I no longer discover new symptoms. For me, it is a continual worsening of everything. The slow slide downhill.

  9. Emma Hinch-Chambers
    Emma Hinch-Chambers says:

    My heart goes out to you. With luck your numbness will lessen (or maybe even go away for a while) as the steroids do their work. This is one of the MS symptoms that I’ve experienced for a few years. When I first had it I found it very difficult to live with, but it’s amazing how we adjust to things. As you said, it becomes the new normal. I did, however, find that the steroids made it less severe. Have hope. We are stronger than MS.
    Huge hugs,
    Em 😙

  10. Meeya
    Meeya says:

    Your posts always make me cry, & laugh, & leave me feeling better & stronger afterwards. Always.
    I really cannot thank you enough for being yöu!!
    Biggest HUGS ever! 😚

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