Entries by Penelope Conway

To whom it may concern: Advice to the world about life with Multiple Sclerosis

To whom it may concern:
There is an entire world filled with people who don’t understand Multiple Sclerosis. I know since you don’t live with the disease yourself it is hard to comprehend, but I hope what I have to say will give you insight into what life is like for me…giving you insight and understanding into the life of someone living with MS.

Multiple Sclerosis and cold weather

Cold weather is not my friend. My muscles and joints choose to stop working the colder it gets thus making moving any body part especially difficult. If you were to ever see a snowman walking (or is it snowperson? I never get those things right.), I think I would be what that looks like…

Ever feel like Eeyore?

“It’s snowing still,” said Eeyore gloomily.
“So it is.”
“And freezing.”
“Is it?”
“Yes,” said Eeyore. “However,” he said, brightening up a little, “we haven’t had an earthquake lately.”

I hate to say it, but Eeyore is right. That gloomy, grey stuffed donkey that lives in the southeast corner of the Hundred Acre Wood is right.

Beautifully broken

Have you ever felt worthless, hopeless and more like a crumpled piece of paper tossed into a trash can than anything of value? What is it about living with multiple sclerosis that makes so many people feel like an outcast?

A myelin thief is on the loose

No one knows exactly when it began, but there is a serial kleptomaniac on the loose that seems to only have an interest in myelin: AKA the Myelin Muncher. With all the myelin that has been stolen over the years, you’d think there would be more evidence left behind…