I woke up one morning about 5 years ago and knew something was wrong…really wrong. The day started out just like it always did. My alarm clock buzzed me awake declaring a new day had begun…
Author Archive for: penelope
About Penelope Conway
It was November 21, 2011, that Penelope Conway was diagnosed with Multiple Sclerosis. She had no prior symptoms or signs and onset was quick. Within three weeks time, she was experiencing numbness to the right side of her face, right torso, and both legs; was having bladder and bowel dysfunction; and optic neuritis set in causing her to lose color in the left eye along with giving her blurred vision. The doctors didn’t take long to come to a diagnosis. After an MRI and a spinal tap, it was clear… this was Multiple Sclerosis.
She had a hard time coming to terms with being diagnosed with a chronic illness. After all, she had plans, and MS was not one of them. And what was MS anyway? She spent the next few months researching and digging for information. The information she found was scary, but deep inside, she knew that this was not the end to her life or to what she was capable of becoming. Many nights, she cried and was still in denial, but as the months passed, she began to see that even though she was in pain every day and her body limited her, there was still a life to be lived… and she was determined to live it.
Entries by Penelope Conway
I went to sleep early last night after taking a muscle relaxer due to spasms in my legs and hands, a pain pill because the pain was relentless and unsettling, and melatonin to hopefully help me sleep if those didn’t do the trick…
For so many, Multiple Sclerosis is filled with times of intense struggle followed by periods of calm. During the calm a new normal is found that consists of changing how everyday tasks are done and limiting those things that are not as important…
Nothing angers me more than people who try to profit off of someone with an illness…any illness, not just multiple sclerosis. People who say, “I know what is causing the disease in your body, and if you will send me $100, I will mail you my book detailing how to rid your body of all that ails it…
I was making a shopping list the other day and forgot how to spell the word pencils. In my mind it didn’t even have the letter c anywhere in it. I struggled for nearly five minutes thinking and thinking and then thinking some more about that silly little word…
I was born a fighter.
I will never give up,
throw in the towel,
It just won’t happen.
It’s hard to not focus on how I feel in my daily fight living with Multiple Sclerosis. Feelings have this way of ruling the day even when I don’t want them to. It takes a lot of energy to manage a chronic illness…
I’m always grateful when I meet new people that want to know about this MS I live with every second of every day. A friend once told me “You don’t get it until you get it” which is very true, but that should never stop someone from sharing the challenges, struggles…
I went outside yesterday and was almost blown over by the wind. I had a hard time fighting through it just getting to my van. It was blowing so hard that I thought I might float away. That actually happened to me once. Not the floating away part…
Have you ever had one of those days when you woke up feeling so bad that you wished the day could just be canceled? That an announcement could be made over the radio…”Today has been canceled due to too many broken nerve signals…
- Simplify your life.
- Watch your thoughts. What goes in, comes out.
- Surround yourself with positive people.
- Take time for yourself, even if it means saying "no" to others.
- Be grateful, laugh and celebrate life.
- Think more about what you have as opposed to what you don't have.
- Help others.
About Positive Living with MS
Positive Living with MS was started by Penelope Conway who was diagnosed with MS in 2013. She found few resources for positive encouragement; to laugh, cry, share, and just feel normal in the midst of a life of chaos; so she decided to start something herself. Positive Living with MS was birthed out of Penelope’s desire to show others that regardless of the challenge, we can all enjoy life to the fullest and find a smile in the storm.