Entries by Penelope Conway

When taking a shower hurts

There are times I wish everyone would just go away and leave me alone so I can clear my head and distance myself from all the drama, arguments, pain and chaos in the world; to find such a place where I can cry as much as I need to and let out a scream or two from time to time—even if only for 5 minutes…

I don’t remember

This week, Monday came and went without incident. The only problem is that I don’t remember Saturday or Sunday having been lived through. I have tried hard thinking about the weekend but the only thing I can remember is that I can’t remember…

Sometimes all I can do is just sit and cry

I remember as a kid taking time to lie in the grass, look up at the sky and discover a world of cloud shaped wonders. Once I saw a bunny eat an elephant, then it pooped out a bear. It seems the impossible can happen with a little bit of imagination and a sky full of clouds. I mean, who ever heard of a bunny eating an elephant before? But I saw it happen right before my very eyes…

Potatoes, eggs and coffee

Once upon a time a daughter complained to her father that her life was miserable and that she didn’t know how she was going to make it. She was tired of fighting and struggling all the time. It seemed just as one problem was solved, another one soon followed…

There’s a nap for that

I think I slept a total of 3 hours last night if I were to add up all the time I wasn’t actually watching the minutes tick by. Boy, can I feel it already today too. Nights like that make for some really interesting days. You will find me yawning in the shower, as I work, and even as I eat. It’s funny how that happens…

Hanging by a thread

I have come through many days feeling emotionally as if I were hanging by a thread. That kind of feeling can be scary and so very real. It’s hard to talk about things like that with someone who isn’t where you are in the middle of MS and life.

Being brave in the face of uncertainty

The first thing I do every morning is pour myself a cup of coffee and sit in my favorite chair with my laptop to write my morning thoughts for you. If someone would have told me several years ago that my thoughts about my life with Multiple Sclerosis would be read by people all around the world, I would have probably looked at them crosseyed and lopsided.