Our Story

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Who We Are?

Positive Living with MS was started in 2014 by Penelope Conway as a way to help others with MS to stay positive in the midst of a terrible disease.

She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day.

Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

  • Multiple Sclerosis

    Multiple Sclerosis (MS) is a disease of the central nervous system. MS is described as an inflammatory demyelinating condition.There is no cure yet, however, there are ways to manage symptoms and reduce progress of the disease.

  • Positive Attitude

    Is it easy to stay positive while living with a chronic illness? Absolutely not! But together with the support of one another, it can be done.

  • Online Community

    Positive Living with MS has a growing Facebook page providing people with a daily dose of humor and positivity.

Voted a Top MS Community by Healthline

Who is Penelope?

It was in 2013 that Penelope Conway was diagnosed with Multiple Sclerosis. She had no prior symptoms or signs and onset was quick. Within three weeks time, she was experiencing numbness to the right side of her face, right torso, and both legs; was having bladder and bowel dysfunction; and optic neuritis set in causing her to lose color in the left eye along with giving her blurred vision. The doctors didn’t take long to come to a diagnosis. After an MRI and a spinal tap, it was clear… this was Multiple Sclerosis.

She had a hard time coming to terms with being diagnosed with a chronic illness. After all, she had plans, and MS was not one of them. And what was MS anyway? She spent the next few months researching and digging for information. The information she found was scary, but deep inside, she knew that this was not the end to her life or to what she was capable of becoming. Many nights, she cried and was still in denial, but as the months passed, she began to see that even though she was in pain every day and her body limited her, there was still a life to be lived… and she was determined to live it.

Penelope Conway

Penelope Conway
Founder
Positive Living with MS

What Penelope wants you to know

Multiple Sclerosis is not the end of the world. It’s true that life won’t be easy, but you can get through this. Don’t lock yourself up distancing yourself from others. It seems like that would be the easy way… to just shut yourself up and pull away. That’s our natural defense mechanism as humans. We build walls up to protect our heart, but in the end, we find that the very walls we built are actually keeping away the people we need most. Take a sledge hammer to that wall, start chiseling away at the concrete even if it will only remove one brick. Keep chiseling one brick at a time. That’s progress in the making.

Reach outside of yourself and do something for others. I find that when I am helping someone else in need, I forget about my own needs. It almost makes my struggle not so big. So, my challenge to you would be to step out and touch someone. Do something to give back to others. Find a place where you can volunteer – a cause or an organization you believe in – and give all that you can of yourself, your talents, your time. Sometimes we just need to step out of our own pain to realize that everyone has pain, and some are struggling even more than you are. A change in perspective can be the very thing that begins crumbling the walls.