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You are worth it

Sometimes life is a roller coaster, only when it comes to Multiple Sclerosis it can mean that literally. Vertigo is something I’ve fought from the start of diagnosis. Some days having the room spin around, shift up and down, and move on me is manageable. Other days, simply sitting on the couch can trigger an entire tsunami of waves.

The uncertainties of just that one symptom can be a lot to handle. Now add to that all of MS let alone all of life and, well…let’s just say some day I would rather stay in bed hiding under the covers than facing the day. Being overwhelmed every move you make is not something anyone wants. It takes a strong person to face a life with MS. It’s definitely not a disease for wimps.

When you get to the point of feeling as if you are drowning in a sea of symptoms, doctor appointments, tests, changes, meds and even health choices, sit down and take a breath. You have to pause at those times in order to make wise decisions and to keep from going crazy.

Making decisions is exhausting work. It really is. There’s a ton of information to weed through, side effects to consider, lifestyle changes to manage, finances to shuffle, and schedules to maintain. Be sure the decisions you make today about managing your MS is what’s best for you, not just because someone online said so or a friend pressured you into it. You have to think of you and your needs…and the you in the future.

You are the one in charge of your life, not MS, a doctor, your spouse or anyone else. Take the time you need to make informed decisions, then when you’re ready…go for it. So  many times we push ourselves too fast and too hard then find ourselves sitting in a puddle of regrets in the middle of the kitchen floor.

Today, I want to encourage you to pause and reflect on all you are doing in life to be sure it’s what’s best for you. If you need to weed some things out…do it. Quit trying to prove how strong you are. You are already strong so there’s nothing to prove. You are strong even when you feel you are at your weakest, even when all you can do is cry, even when you are overwhelmed with symptoms and a life of change, even when decisions are tough.

Pause today for yourself. You are worth it!

believe

I believe in you

I didn’t get this far in life alone. I had help…and lots of it. The support of family, friends, teachers, coaches, doctors, pastors, neighbors and strangers were invaluable. At times when I was impatient, they helped calm my emotions; when I was filled with fear, they showed me I was stronger than I could have ever imagined; when I felt hopeless, they encouraged me; when sad, they made me smile. I couldn’t have made it by myself. Continue reading “I believe in you” »

face today

Face today with courage

I woke up this morning with this one thought on my mind…you can’t give up, you have to keep hoping.

Many of you are facing some very difficult times right now. You don’t know what to do or who to talk to. It may be Multiple Sclerosis related or something else in your life that has brought such pain that you aren’t sure how you’ll make it through. Don’t allow your day to become so focused on the pain that you lose sight of all the good you have around you. People really do care about you, even when you think they don’t. You are loved…dearly loved!

If I could, I would sit down with you and we could cry over a giant chocolate muffin or slice of cheese cake. Sometimes that’s all you need…a moment to release the floodgate of tears in order to relieve the pressure that has been building up.

Keep hoping…face today with courage and a smile. I’m proud of you and the strength you carry. Show the world, and MS, just what you are made of.

 

I think we just broke the world

There have beens days when I have looked back at what used to be and wished life was different. I have even envied others who didn’t have a disability. What? I shouldn’t think like that? Sure that’s easy to say, but thoughts happen, and in my head they happen more than I care to admit. I don’t think you would want to live a day in my head. It’s kinda scary in there. I can think of some crazy ideas and have some equally wild woe-is-me moments.  Continue reading “I think we just broke the world” »