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hero

You are an MS hero

I’m not ashamed of my story. I’m not ashamed of the life I live. I’m not ashamed of my problems, struggles and hard times. I wasn’t before I had Multiple Sclerosis and I’m not now.

We live in a world filled with people who pretend their life is full of only sweetness and that problems simply don’t exist in their world. They think that denying all pain and problems is what a positive attitude is all about…but it’s not. There’s a difference in smiling through the pain when faced with difficulties and in hiding the fact that you’re hurting simply because you can’t bear someone knowing that your life isn’t perfect or that you need help.

We have this inner desire to be accepted and liked by others but don’t hide the realness of who you are just to fit in. That kind of “fitting in” will fade away and you will be left wondering where the people went as time passes. True friends accept you for you…warts and all.

There are times I might share some TMI (too much information) moments…and I’m okay with that. If I want to tell a poop story, I do. I’ve told neighbors, strangers, bosses, friends and family some crazy TMI moments when asked how I’m doing or what’s going on in my life. Sometimes the stories come tumbling out of my mouth before I even realize what I’m saying, but I’ve never been one to hide how I feel or what’s going on in my life.

Why do I do that? Because if I don’t share the reality of MS with others or talk about the struggle I’m going through, how will they ever learn or even know when I need a hug, some encouragement or help? They aren’t going to learn about MS by watching a movie or going out to eat with friends. Most won’t even look things up for themselves online (no matter how inaccurate the information may be) unless it affects them personally. They learn by asking questions and by watching us as we deal with our daily struggles with MS. Our lives are a walking billboard and we get to choose the message on display.

It can be a message of denial and pretending to be okay, but people will never learn anything if you cover up your needs and pains. Asking for help, sharing your problems, opening up your heart, talking about the difficulties…that’s what’s needed to get the message out. Not in a complaining, “woe is me” kind of way but in an “I’m in a lot of pain today and having trouble thinking, can you help me get a few things at the store” kind of way.

You can’t be ashamed of your life or of the fact that you are living with MS. Embrace the person that you are and use your life as a living example of how a person can rise up in the struggle. It’s okay to have a melt down. It’s okay to fall apart. It’s okay to have a bad day. Real heroes do. And you are a hero. Don’t hide your cape under a boring t-shirt. Wear it proudly and rise up to become the warrior you were meant to be.

face today

Face today with courage

I woke up this morning with this one thought on my mind…you can’t give up, you have to keep hoping.

Many of you are facing some very difficult times right now. You don’t know what to do or who to talk to. It may be Multiple Sclerosis related or something else in your life that has brought such pain that you aren’t sure how you’ll make it through. Don’t allow your day to become so focused on the pain that you lose sight of all the good you have around you. People really do care about you, even when you think they don’t. You are loved…dearly loved!

If I could, I would sit down with you and we could cry over a giant chocolate muffin or slice of cheese cake. Sometimes that’s all you need…a moment to release the floodgate of tears in order to relieve the pressure that has been building up.

Keep hoping…face today with courage and a smile. I’m proud of you and the strength you carry. Show the world, and MS, just what you are made of.

 

potatoes eggs and coffee

Potatoes, Eggs and Coffee

The past few weeks for me have been hard. Sometimes life just keeps happening and no amount of searching uncovers the STOP button. This short inspiring story has been running through my mind lately. It was something I read a few years ago and I find myself thinking of it from time to time, especially when I’m having a really bad day. Every day we are faced with choices. We may not be able to choose the struggle, but we do get to choose how we will respond to it…

Once upon a time a daughter complained to her father that her life was miserable and that she didn’t know how she was going to make it. She was tired of fighting and struggling all the time. It seemed just as one problem was solved, another one soon followed.

Her father, a chef, took her to the kitchen. He filled three pots with water and placed each on a high fire. Once the three pots began to boil, he placed potatoes in one pot, eggs in the second pot and ground coffee beans in the third pot. He then let them sit and boil, without saying a word to his daughter. The daughter, moaned and impatiently waited, wondering what he was doing. After twenty minutes he turned off the burners. He took the potatoes out of the pot and placed them in a bowl. He pulled the eggs out and placed them in a bowl. He then ladled the coffee out and placed it in a cup.

Turning to her, he asked. “Daughter, what do you see?” “Potatoes, eggs and coffee,” she hastily replied.

“Look closer”, he said, “and touch the potatoes.” She did and noted that they were soft.

He then asked her to take an egg and break it. After pulling off the shell, she observed the hard-boiled egg.

Finally, he asked her to sip the coffee. Its rich aroma brought a smile to her face.

“Father, what does this mean?” she asked.

He then explained that the potatoes, the eggs and coffee beans had each faced the same adversity-the boiling water. However, each one reacted differently. The potato went in strong, hard and unrelenting, but in boiling water, it became soft and weak. The egg was fragile, with the thin outer shell protecting its liquid interior until it was put in the boiling water. Then the inside of the egg became hard. However, the ground coffee beans were unique. After they were exposed to the boiling water, they changed the water and created something new.

“Which one are you?” he asked his daughter. “When adversity knocks on your door, how do you respond? Are you a potato, an egg, or a coffee bean?”

In life, things happen around us and things happen to us, but the only thing that truly matters is how you choose to react to it and what you make out of it. Life is all about leaning, adopting and converting all the struggles that we experience into something positive.

You’re not alone in the fight

A mosquito woke me up this morning. Do you know how annoying it is to have something you can’t see buzzing around your ears? Bzzzzz, bzzzzz, bzzzzz. I swatted at the air a few times to distract it and make it go away, but each time I did, it just came back again. I’m sure I will find a welt or two somewhere on my arms or neck later on from its bite. Just thinking about it is making me itch. Continue reading “You’re not alone in the fight” »

you are brave

Find your brave

Dear Weary One,

I know your heart is heavy. Right now you are on the verge of tears…tears that have been collecting deep in the spaces of your heart and flooding over into your mind. You have met reality face to face and you don’t like it one bit. Multiple Sclerosis is your reality. It’s real and you feel it deep. You are finding yourself overwhelmed and Continue reading “Find your brave” »