Living in an upside-down world

Three years ago I wanted to do something to help others like me who live day in and day out with Multiple Sclerosis. I didn’t actually know if the things I had to share or write about would make a difference or even matter, but I knew I needed to try. If not for others, at least for my own sanity and peace of mind.

So, I started writing away even though I was unsure who would actually read what I had to say. I know that sometimes I get serious and real about what things are like for me and others with MS. Other times I can be a bit goofy. But my hope has always been to help others feel less alone and less scared about living with a chronic illness, especially those with Multiple Sclerosis.

I have been amazed at the growth of Positive Living with MS over that short time, not just among other MSers but also with caregivers and people who are dealing with other chronic illnesses and diseases. We all have something in common though…an unexpected disruption to our lives that brought along with it a whirlwind of change, chaos and pain.

We didn’t choose to have our lives flipped upside down. We didn’t choose a life of constant struggle. Yet somehow it found us and here we are living in a world that we know nothing about. We research. We dig for answers. We hope. We cry. We even get discouraged.

But you know, no matter how low our emotions get or how bad life becomes, somehow we find the strength to keep going. Somehow we get through just one more day. Somehow hope fills our hearts when the weariness grows deep. Somehow. Somehow.

I don’t know how MS really works or why some people have more challenges and difficulties in life than others, but I do know that no matter what you are facing or how hard things get, you are not alone. I am here along with thousands of others to bring encouragement, hope and peace to a broken and chaotic life.

Together we love, help, dream, and live for a better tomorrow. Together we stand arm in arm holding each other up as we swing our swords in battle. What a sightly bunch of warriors we are. Bruised, wobbly, weary, tired…but somehow less afraid of tomorrow.

If you feel sad today, know that you aren’t alone. If you feel you are losing hope, hang on a few more days because the sun will come out and the birds will begin singing once again.

You are amazingly strong, resilient and a fighter even on your weakest days…especially on your weakest days. Keep standing. Keep hoping for a cure. Keep sharing. Keep fighting.

MS Gets on My NervesMS WarriorMS Superhero  

About the Author

Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

36 replies
  1. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thanks Penelope it has been good to read your posts and both the good times and bad you have gone through. They have helped me deal with some odd things that have happened and a bit of laughter can do no one any harm. As I have written I have a new computer that does have dicky keys. I an getting used to a functioning keyboard and a working in built mouse and a remote plug in one. It has settled me down a bit as have a few other good things happen recently. I’ll let you know soon all the things that have happened.

  2. Glenys Jackson
    Glenys Jackson says:

    It helps to know there are others going through similar problems to me and be able to encourage them as they, like me, ‘shuffle’ through life and learn to laugh through everything. Thanks.

  3. Brenda Biggers
    Brenda Biggers says:

    As the wife of a person with MS for over 46 years and more recently as the mother of a daughter now diagnosed with MS, thank you for your posts. Remember it takes a village to get us through life and your readers have become that village.

  4. Sandra
    Sandra says:

    I look forward to your posts in my in box, even though I don’t always read them straight away.They are inspirational and positive and give me plenty of things to think about and consider.
    Hope you can keep this going, you must surely know you are appreciated by all who come across your wonderful website.
    Thank You
    Sandra M

  5. Della Smalley
    Della Smalley says:

    I want to Thank you for your page n yes for me it helps me n doesn’t make me feel alone,I like you have lost friends because of my MS n you can always put a smile on my face.Thank you Penelope

  6. Mary E Slavik
    Mary E Slavik says:

    Hearing from you is sunshine on dreary days, inspiration when down, support when feeling alone. PLEASE keep up with what you are doing!!!

  7. Tricia Williams
    Tricia Williams says:

    I love your positivity in all of this. Even in/our darkest days I know there is a small wobbly, little blinking light in the distance and we have to take pigeon steps each day to get there. But get there we will. X

  8. Leslie Beaver
    Leslie Beaver says:

    I enjoy your every utterance. Because we share an understanding that those without MS are unlikely to have. My monthly group meetings of fellow MSers are valued for exactly the same reason. Our personal realities will of course differ. But we understand!

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