Shove Multiple Sclerosis out of the drivers seat

Weather can be so unpredictable. I would love to be able to tell it to snow on the hottest day in July, or to rain when not one drop of water has been seen for months, or to make a storm dissolve and disappear. But no matter how hard I try, I can’t make those things happen. The wind didn’t ask me which way to blow today and the sun didn’t get my permission to paint the sky purple and red.

I think the weather is just as unpredictable as multiple sclerosis. One day you may wake up feeling as if you could conquer the world and other days you feel as if the world has conquered you. No matter how prepared you think you are or how much you try to guess what tomorrow may bring, the unplanned and unexpected happens. If you haven’t figured it out yet, the crazies come when you least expect them.

Overnight, MS seems to have some kind of party in my body, or a revolt (I haven’t figured out which one), causing radical changes that I hadn’t planned for. If I could choose, I would make it all go away. There are days I would love to be able to tell my legs to march forward or my voice to speak louder or the pain to take a vacation, but I can’t simply wish my MS away. That would be wonderful if I could.

If something isn’t working, don’t get down on yourself or allow your emotions to overwhelm you with fears and worries. You are living in a different world now with a different kind of “normal.” The only control you have is in how you respond to the unpredictable and how you react to the changes. Believe me, you will have plenty of opportunities to work on those things. Some days I’m a pro at it, other times not so much.

The most important thing I have learned is to be thankful for each new day I am given and to cherish the people in my life. Those are the things that really matter anyway. You can’t relive yesterday and you can’t live tomorrow in advance…all you have is right now, this very moment. Make the most out of every second of it.

Don’t give MS the satisfaction of consuming your day and overloading your emotions. That’s the one thing you do have control over. So shove MS out of the drivers seat and you take the wheel. You’re in charge of your today. You decide how fast you go, if you need to pull over into a rest stop for a break, or if you take the scenic route.

I’m spending my day stuck in the mechanic shop getting a flat tire fixed surrounded by the smell of rubber tires, grease and stale coffee…but I found a crossword puzzle to occupy my time. And did you know the first product Motorola started to develop was a record player for cars? The most famous record player then was the Victrola, so they called themselves Motorola. Just thought you might like to know. (grin)

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About the Author

Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

11 replies
  1. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thanks for that bit of trivia I wasn’t aware of that. We do have to take our days back and live again. On May 1st my wife and I are going on a 12 day holiday and it’s the first holiday we are having that it’es only us not anyone else from here. This is something I hadn’t thought of but it’s going to be good. So from that time I won’t be (I think) connected so I won’t get my emails.

  2. Camil N Lonnie King
    Camil N Lonnie King says:

    I don’t sleep at night because of the pain. I’ve gotten to the point that I can’t work anymore. It has taken along time for me to finally accept it. So in the morning regardless of how I wake up, I thank god for being alive.

  3. Jamie
    Jamie says:

    I needed this story today.
    I fell down for the first time in the grocery store ….I don’t know what to say exactly happened…if my legs just went out or my knee went out or my ankle twisted..not sure..
    After.. I was an emotional wreck, had thoughts and feelings I have never had before, even though I have battle this disease for 11 years this was a first 🙁
    Well today I needed to go back to the store for some items for dinner…I sat on my couch scared for the first time not sure if i should get out alone or wait for my husband to go with me….WELL…… I got in the drivers seat today, i was determine to not let that fear consume me that was trying to take me over.

    But let me say I held on for dear life to my buggie 🙂

    Thank you for all the encouragement

  4. Mary Devereux
    Mary Devereux says:

    I to wish it woukd take a vacation home from work could cry with tge the exhaustion in my jaws and lungs from a day of taking and arns ready to fall of from typing trying to cope with PPMS every action has a conceques

  5. Heather Adsit
    Heather Adsit says:

    Those days are what scared me so bad at the beginning.
    Now I am learning how to cope with RRMS and I’m doing everything I use to again.

    Well… I try. I have to take notes on how to not cause a ms flair but other than that.

    I shoved that monster out of the seat and I’m living life 🙂

    Sometimes you just have to find a way 🙂
    Even if the road is a bit bumpy 😉

    Thanks for another wonderful posts 🙂

    Hope your day is good today 🙂

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