Fight on, oh mighty warrior

Multiple Sclerosis is weird. You can wake up one morning feeling okay and the next wishing you didn’t wake up at all. It messes with your body, your emotions, your relationships, and your job. It has this way of touching every part your life.

MS is definitely not a disease you can keep to yourself. We try though…don’t we? I know I do. I try hard to keep it neatly contained in its own little space but it doesn’t seem to stay where I want it to.

If only people could see inside my life for a day and experience not just the physical symptoms of MS, but the emotional, relational, and financial challenges it brings along with it.

MS is something I wouldn’t wish on my worst enemy, but it is something I wish everyone could experience for a day so they would have a bit more understanding, compassion and patience with me. This way, when I’m having a bad day, I don’t have to work so hard trying to explain myself and having to convince people that my pain and struggles are real.

Today I woke up and my hands wouldn’t cooperate. The tremors were a bit more intense than I have experienced in times past. As a matter of fact, my entire body feels like an earthquake has exploded in 10 different directions. Nothing is working as it should. But I peck out my thoughts and send my heartfelt message of encouragement to you because I don’t want anyone to feel defeated or hopeless. I don’t want anyone to give up.

If I can do it, you can do it. We got this.

You are my hero because you fight battles every day that no one will ever see or know about. You wield your sword and fight gallantly even when your knees buckle under you and it’s hard to hold your head up. Never doubt, not for a moment, your strength because even on your weakest days you are strong.

Fight on, oh mighty warrior. Fight on!

MS Gets on My NervesMS WarriorMS Superhero  

About the Author

Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

65 replies
  1. Sandra Lorenson Holthe
    Sandra Lorenson Holthe says:

    I’m lucky most of my relatives and friends understand why, at only 62, I need a walker to walk. For the rest of the people…it gives them someone to stare at and talk about….those are the people that need a few days in our shoes.

  2. Dave N Rhonda Casey
    Dave N Rhonda Casey says:

    Thank you Penelope for all that you share every day. My husband has ms and diagnosed for 15 yrs now. You help remind me of the struggles he faces daily and how strong I must be for both of us. And to stay positive and we do joke a lot to help deal with the craziness it does to the body and mind. God bless you!

  3. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Well written Penelope. I am just pleased that in all my mess and troubles I still have a loving wife who is dealing with something as bad as MS. We have an ‘interesting’ life together as you may imagine. At the start of next month (i.e. 1st May) we are going on our first holiday we have had by ourselves since our brief honeymoon (that’s 35 years ago). It will be fun for us and we’ll see how well the tourist people deal with us,.

  4. Ellen Dobson
    Ellen Dobson says:

    Love you Penelope!!! Couldn’t have said it better myself!! Thank you for all you do… you always put a smile on my face with your loving sense of humour & quick Witt you include in most of your posts!!

  5. Monica Schamberger
    Monica Schamberger says:

    You are a true warrior, fighting for all of us out here in never never land. Never never give up, never never let you’re guard down, never never forget who you really are.

  6. Julie Mitchell Dilbeck
    Julie Mitchell Dilbeck says:

    Thanks for the encouragement, Penelope. MS is is so unpredictable. I woke up feeling great this morning, and now I’m back in bed with unexplainable exhaustion. It’s okay, though. “I can do all things through him who strengthens me.” – Philippians 4:13

  7. Peggy Pike
    Peggy Pike says:

    I know what you go through on a daily basics. I have 2 daughters and a grand daughter with MS. It is no picnic . I am sorry for every one that has this terrible MS .Will all ways be thinking of you

  8. Robin Morris
    Robin Morris says:

    I think having to explain myself is more tiring than my disorder. If you see I’m struggling please don’t ask me what’s wrong? There are a few people I wish would have to experience this for at least a month maybe then they would realize how wrong they were. Maybe not they have ice water in the veins.

  9. Lucia Wyles
    Lucia Wyles says:

    So true! I’m tired of having to explain my self and justify why one day I might just make it and the next it could be no way! One day my daughter called when I was in a bit of a state and she was mortified I hadn’t told her what really goes on in my life! I try hard to hide symptoms but it is so exhausting! Bless you all. Xxxx

  10. Kathy Buys
    Kathy Buys says:

    It’s hard enough to have such a relentless disease process, then to have your Dr. explain to you “it’s the disease & we don’t have a cure, treatment, or explanation for improvement” OK let me try to process that again, I just wanted a new theory, idea, anything! Then to hear these snide blanket criticisms, usually not first person by someone you care about & love. The stories I’ve heard have changed my life & made me withdraw from what I thought to be true. If only MS would withdraw so I could find a new normal, I’m like a hummingbird looking for a safe place to rest…..

  11. Theresa Gesualdi
    Theresa Gesualdi says:

    I sooooo agree with you on this!! Unless your symptoms are obvious, like a broken leg, or something people have experience with, like cancer, the average person just doesn’t get it.

  12. Lauren Campbell Kovacs
    Lauren Campbell Kovacs says:

    True. The names I gave been called and what people think of me… but I have learned to carry on and pity their lack of empathy. After 24 years of this, many are too weak to walk in my shoes or have so much personal baggage they can’t see past their own nose. I pity them and pray for them. God gives me the strength I need.

  13. Aileen Brown
    Aileen Brown says:

    Hope you feeling better and yes I often think walk a day in my shoes (a bad one) or spend a bad night with me and maybe you would understand but we wouldn’t wish this on anyone

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