It rained much of the day yesterday and will keep raining throughout the day today. It’s just one of those stay in my PJ’s kind of days. I’m already snuggled up on the couch with my coffee and laptop, and wearing my fuzzy socks with the TV remote nearby so I can binge watch Star Trek. Yes, I’m a Trekkie!
I’m even prepared if the power should go out with a flashlight nearby…just in case. You never know so it’s always good to be prepared.
When a storm causes a power outage, it messes up our normal routine. Stores and hospitals will switch to a battery backup system or a generator to keep minimal equipment functioning until the power is restored, but many homes are ill-equipped for those times. Most people find themselves out of sorts and scrambling to gather the basic necessities to get through until the power is restored.
Living with multiple sclerosis is much like those power outage moments. Our Central Nervous System (CNS) is short circuiting on us due to downed lines and broken substations. Sometimes minimal outages happen which are easily managed even if they are out for an extended period of time, but when our ability to function normally (such as walking, talking, eating or speaking) are disrupted, it’s challenging to get through those times. It would be amazing if we could simply plug into a battery backup or a generator to restore the power until our CNS could be repaired.
CNS Workers are dispatched the moment an outage is discovered, but most of the time the damage to our CNS is unable to be repaired thus causing our bodies to remain in a constant State of Emergency. Some pathways are no longer able to be traveled down and there are “bridge out” signs posted everywhere.
We are left limited in what we can do. It’s not easy, but we adapt. We have learned to store up extra candles, flashlights, propane tanks and matches, but those things can only last so long. For many of us, our spare flashlight has already burned out and our candles have run out of wax so we improvise and MacGyver things together just to get through the day.
We find ourselves limping through life knowing that this is just how it is. That our life has permanently changed as new storms keep blasting through the already accumulated chaos.
You may be experiencing an unexpected outage right now. Those times can be scary, but don’t panic. You are going to make it through this. You can’t give up.
You know that old saying “when the going gets tough, the tough get going”? Well, that’s you. You’re tough and much stronger than you realize.
You didn’t ask for this fight, you’re not always equipped for the challenges it brings, but through everything you face, your strength shines through even if it is spent snuggled up on the couch binge watching your favorite show on TV.
You are strong even when you break down in tears just because you couldn’t get to the bathroom in time or when you end up spilling your lunch all over you because you couldn’t hold onto your plate. When your body trembles, your muscles give out and your voice shakes, you are still amazingly strong.
Your body may remain in a constant State of Emergency but through it all keep hoping for a better tomorrow because tomorrow things could be better. Never stop hoping, never stop trying, and never EVER give up.
Remember, you get where you are going one step at a time. Don’t give up now. Take a break, rest, but don’t stop pushing through. You got this!