Walking into the unknown

Have you ever woken up in the morning and for a moment not just forgotten what you have planned for the day, but who you are, what day it is, where you are and basically everything and anything about life? That was my morning wake up experience today.

For a few minutes I sat in my bed and my mind was completely blank. Nothing, and I mean nothing, was there. It was a weird feeling. Most of the time that kind of thing happens when I’m startled awake from a deep sleep. It just takes my brain a bit longer to wake up than the rest of me.

When something happens that I can’t do anything about, I used to get frustrated and even angry. I hated not being in charge of my life, my brain and my body, but Multiple Sclerosis gave me a wake up call. It changed my way of thinking.

Because of MS, I have learned that sometimes in life we aren’t going to know what to do, and that’s okay. Sometimes, we aren’t going to know why things happen, how to fix them, or when they will get better. Sometimes, we are going to stumble our way through our day…many times literally. Sometimes we will find everything going well, then all of a sudden get slugged in the gut from out of nowhere with circumstances that change our day and life forever.

You are not alone feeling that way. We all experience it in one form or another. No one living with MS has an instruction booklet on how MS is going to affect them personally or something that shows them what they should do with each new challenge or symptom they experience. MS didn’t come packaged in pretty wrapping paper tied together with ribbons and bows.

When you start to feel lost along your journey, try not to hide yourself away. Step out from the fears and keep walking the road laid out in front of you. Even though MS may be difficult at the moment, I know you can do this.

Divide your day up into small segments and celebrate each one that you complete. Did you wake up today? Check! That’s your first victory to make note of.

You will find by celebrating each moment, that your day is filled with many more victories than defeats. Then when your day is over, you will know that you fought great battles, and although bruised and limping…you made it.

MS Gets on My NervesMS WarriorMS Superhero  


About the Author
About the Author
Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

31 replies
  1. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thanks Penelope a good reminder.
    Now I had a strange thought yesterday. If the MS came from a scenario many decades ago and we were able to stop it and prevent MS happening, that would be a dream coming true. But thinking a bit deeper I realised that if it didn’t happen where would we be today?
    We wouldn’t have met the good and bad people we have met due to MS. We wouldn’t have learnt to live the way we do and learnt different skills that wouldn’t be around.
    And more seriously we wouldn’t know how many caring people we have on this site, in fact it would not exist at all.
    Now do we really want that change to happen now?
    I wouldn’t anyway no matter how much I have suffered and how much I have grown in all my messes and choices made to help me live as best I can. I would certainly be the person I am today.

    Reply
  2. Misty Eacret-Sook says:

    The unknown is precisely one reason why I fear starting another relationship. :/ I’m doing great now but what if I bring someone into my life and eventually I’m not the same person anymore and can’t get out and do things like they can. I don’t want to be a burden…

    Reply
    • Jana Morgan
      Jana Morgan says:

      Get rid of the word ‘Burden’ from your mind! It doesn’t do anything good and doesn’t describe you, or any of us, at all. Totally negative word so call it something silly (goldfish, balloon, carrot…) instead that will make you smile!! We need any excuse for a smile!

      Reply
  3. Teri Kolar says:

    Thank you. Got hit yesterday and freaked me out but much better today and back to routine. Don’t focus on those moments. Focus on the good ones…I got through it, I’m smiling, bring it on…make necessary adjustments but we’re all ok!!

    Reply
    • Ellie
      Ellie says:

      So very true Barbara – I’ve become quite afraid of making plans as so many times I’ve not been able to go – very frustrating but we have to keep trying I guess x

      Reply

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