Time for change

In 2014, when I started Positive Living with MS, I committed to writing a blog post every day. I never imagined it would become so popular. Even today I am amazed at how far and wide my readership has become. My multiple sclerosis progression was minimal at that time and I had the energy necessary to write daily sharing my encouragement, humor and daily life with everyone.

As time passed I changed the daily blog posting to 3 times a week ensuring that I was still helping others to navigate this crazy terrain we find ourselves in but giving me time to focus on myself as well.

Now, here we are in 2017 and I am finding that 3 times a week is a bit too much for me to manage. I am still committed to sharing my life, my heart and my struggles with everyone because I know that what I have to share is helpful not only to the MS world but to caregivers, family and friends of people living with MS as well.

Only now I am changing up my commitment yet again, this time I have made the decision to blog twice a week…every Tuesday and Thursday. I will still post my silly statuses to Facebook and you can always go back and read past blog posts.

I want you to know that it’s because of you that I get up each morning and smile. I am so thankful for your support online and for the courage you carry in your heart as you go throughout your day. You are the true warriors. Never forget that.

MS Gets on My NervesMS WarriorMS Superhero  

About the Author

Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

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  1. Jana Morgan
    Jana Morgan says:

    I think your posts are brilliant and wonder how you write so often! They are always special and make me much happier but a smaller amount will still make me happy so just do what you can. No exhausting yourself as I will read anything you write twice anyway!! 🙂 You have already done so much for me and it has turned my life around. Thanks heaps and hope you and all of us feel better from this crazy MS! Thanks heaps!

  2. indulge
    indulge says:

    Thankyou Penelope for your wonderful posts. Take care of yourself and you will be in my thoughts. I will, as usual, look forward to your posts and know that you are appreciated for the wonderful gift you have of relating life with MS in such a caring and understanding way.

  3. Karen Austin
    Karen Austin says:

    It’s good to hear you’re looking after yourself Penelope. I always look forward to reading your blogs and funny posts so thank you for all you do. ❤️❤️❤️❤️❤️

  4. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    I’m sorry to hear that you have had to cut down Penelope. But at the same time I am totally aware that MS is always trying to take away the good things in our lives. It has done so much in mine so I can understand your problem well. Just knowing it happens to to someone else is an inspiration to carry on and keep doing things.
    You have been a great help to me and reading the other replies has brought me comfort too.

  5. Carla L Broadbent Rogers
    Carla L Broadbent Rogers says:

    For me since I have been following you Miss Penelope, MS stands for “Mighty Special”, because that is what you are. Stay true to you. Be well. Friendly smiles in all your travels.

  6. Charlie Denton
    Charlie Denton says:

    I have been with you since that day and you are a true hero. Thanks for the laughs, even when i don’t want to and the encouragement to keep going, when i feel i can’t go on no more. You’re amazing! Stay Strong~

  7. Glenys Jackson
    Glenys Jackson says:

    You have encouraged many of us and we are so thankful to you for that. I’ll continue reading and savouring your posts whenever you feel able to write them, but never want it to be at the cost of your exhaustion and health. You matter more than that!

  8. Annie Pankow
    Annie Pankow says:

    You’ve already done so much for us, with your wit, humor and friendship. Do take care of yourself, it’s out turn to say to you: you are not alone. We’ll stay close to you in heart and soul. We are already so thankful for what you’ve done. Only do what you can without stressing or getting too tired. Thank you!

  9. Maria Clancy
    Maria Clancy says:

    take care of yourself first and foremost.we are adults coping in our own way you dont owe any one of us anymore.Thank you and God bless.will keep an eye out for your uplifting posts. hugs.

  10. June Woodfine
    June Woodfine says:

    Many thanks for sharing your blogs as I quite understand where you are coming from having m/s yourself but the nice thing is your sharing and caring for all others no matter who or where they are. You really have made me feel that I am not on my own. My youngest daughter also has m/s as well as my self. Penelope you truly are an inspiration and I realise now that its not the end of the world and to keep going on as best as I can without thinking you are on your own. Many thanks and look forward to any future blogs x

  11. Evelyn DeSadier
    Evelyn DeSadier says:

    Hey Penelope, thank you SO much for everything that you do and have done! You have inspired me to go back to writing and I understand the struggle all too well. There have been posts from you that made me laugh and cry because I know that you get it! Even if my family and friends don’t get the impact of living with MS, I know that you do. Please take care of yourself! Sending you happy thoughts, gratitude and hugs!

  12. Mary
    Mary says:

    You are truly my greatest inspiration. I appreciate and look forward to each and everyone of your posts. Our MS seems to be progressing at the same pace and your experiences seem to mirror mine so many times. I just want you to know, on my bad days I look forward to reading your thoughts, as I know something you write will connect with me and make me feel better. On those days that I feel I just can’t do it anymore, you come through with a post that makes me feel I can do it one more day. Take care, I will still be looking for you every Tuesday and Thursday.

  13. Joyce McManamon
    Joyce McManamon says:

    You take care of yourself and don’t over due. We all know how MS can bring you down – some days a lot harder than others. We will still enjoy your blog when you can. Take care.

  14. Clive Whiteside
    Clive Whiteside says:

    Hi Penelope sorry to learn that yiu are having to cut back on your posts on Facebook however everyone of us living with MS understand why you need to do so. Look forward to the pots you will continue to do and it is always a pleasure to share them take Care of your self

  15. Carole Galloway
    Carole Galloway says:

    I love reading your blogs, they are informative, funny and easy for others without MS to understand what people with MS go through daily. Time to take care of yourself and will be looking forward to Tues. and Thurs. blogs and if you can’t make it Tues. and Thurs. that is okay too. The best of luck to you and God bless.

  16. Stacey White
    Stacey White says:

    For those of us who have been affected by ms in one way or another we understand! No we may not like it or agree with it but u have to put urself first! U have to do what’s best for you and we support you ! Good luck and I personally hope your not suffering too much xx

  17. Teresa Higgins
    Teresa Higgins says:

    Change with MS is definitely a day to day even hour to hour at times. Acceptance of those changes can be a horrible process. But I’m so proud of you, that you accepted and take care of yourself to continually help others! I’ve had my MS for 27 years and as a result I am quadriplegic, using a dictation program. I also wrote a book “our blessed life together” hoping others somehow related to MS will glean something from our experiences. Hang in there – see you on Tuesdays and Thursdays. Blessings.

  18. Sue Allen
    Sue Allen says:

    Like you i think of others with M.S. when i wake up in the morning……i know there are a lot of people with M.S. far worse than me. Take care of yourself x

  19. Melanie Cutts
    Melanie Cutts says:

    I was diagnosed in 2014 and had no idea how MS was going to affect me, my family and friends. In 3 years it has robbed me of a number of things; my job as a primary teacher, my ability to drive, my ability to leave my house unaccompanied. Thanks to you taking the time and effort to write your blogs I smile in the face of adversity, I cry, I laugh, I shout and get angry but knowing others are going through exactly the same gives me the strength to embrace each day. Sorry for the essay but you are AMAZING! Rest as much as possible any blog will be gratefully received xx

  20. Jill Rios
    Jill Rios says:

    I appreciate everything you do for us! Love your FB one liners! They always make me smile or sometimes laugh at loud while I’m reading them in a doctors office waiting room!

  21. Richard Humpston Jr
    Richard Humpston Jr says:

    Love your post! When I first retired from my job in 2014, I promised myself that I would volunteer in a children’s nursery as much as I could. That was twice a week! Now I’m lucky if I manage once a fortnight! But when I go in I always feel appreciated, just like when I see your post I always appreciate reading it! Thank you, and enjoy your future xxx

  22. Ann LaBarbera
    Ann LaBarbera says:

    I’m so sorry you’re having to scale back on anything in your life. 🙁 Don’t worry about your readers, we’ll be happy with a status once in a while as long as you’re ok. Just take care of you! :-* (((Huge Hugs))), much <3 & more thanks than I can express for all you've given of yourself to help us all. <3

  23. Jan Hoback Jasper
    Jan Hoback Jasper says:

    You call the shots, Penelope, and do what’s best for you! I love your “silly statuses” on Facebook! I am thankful for you helping to keep my humor in check daily! God bless you! 🙂 <3

  24. Raeann Smoot
    Raeann Smoot says:

    Penelope, you have helped so many of us with coping with this disease. I’m sure it is therapeutic for you as well. I support your decision, not that you need my approval. You have to focus on your own issues first. That’s where a lot of material comes from. You have reassured me many times that I’m not alone and I’m not crazy. From the bottom of my heart, thank you for sharing.

  25. Mzsc Ortiz
    Mzsc Ortiz says:

    I appreciate you everyday! When I was first diagnosed you were the first person and page I looked up to for information and a Lil bit of happiness ! Thank you!

  26. Belinda Lewis
    Belinda Lewis says:

    I totally understand and I’m so glad you haven’t decided to stop (completely). You too, are a true blessing and I look forward to the big O belly laughs,I get from your posts!

  27. Amy Butler
    Amy Butler says:

    There are so many times that I have burst out laughing and my spouse asks, “Are you laughing at Positive Living with MS?”. Thank you for the best medicine you deliver to us so often.

  28. Juana Driver
    Juana Driver says:

    LOVE you sweet and precious lady! You do what you have to do. I’ve learned so much in the time I have read , shared and told others about your page. Totally understand as we travel this road changes are a coming! ❤

  29. Jackie
    Jackie says:

    Thank you for all your posts, it means so much to us and thank you for sharing your moments with us.

  30. Ruthann Pyle
    Ruthann Pyle says:

    I am a mother of a beautiful MS 52 year old wife and mother. I want to help but see from your blogs how you and MS people think. It hurts so many. Thank you for your wonderful labor of love that helps so many!

  31. Leslie Beaver
    Leslie Beaver says:

    This obviously is the sensible and proper decision. I will as a regular reader miss the posts but fully support your decision. I would never allow the opinions of others to affect my personal choices that are dictated by my MS. And so, I obviously support your right to do the same.

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