Multiple Sclerosis is unpredictable

It’s hard to predict the weather. I will go to weather websites to see what the forecast will be for the day and even they can get it wrong. Sometimes it will say it’s going to rain and the entire day ends up filled with sunshine while other times sunshine is predicted and it rains all day.

I can no more predict the weather than I can predict how Multiple Sclerosis is going to behave for the day. One day I may wake up mobile and tired yet ready to tackle anything that comes my way. Then the next day I find myself unable to move at a speed faster than a snail walking through a dollop of peanut butter.

It’s almost as if at some point in the middle of the night all my nerves get together to strategize on ways to trip me up. Sometimes it’s weakness, other times it’s pain. I can be hit with fatigue, dizziness, bathroom mishaps, and double vision all at the same time too. Some symptoms are a constant while others come and go at their leisure.

Because of that, it makes it hard to plan for the day. That happens with the weather, doesn’t it?! Many times you don’t know if you will need an umbrella, snow boots, wind jacket or sunglasses. With MS you don’t know if you will need your walking cane, leg brace, wheelchair or scooter. Without fail I end up picking the wrong thing. It happens all the time.

Before I ended up in my wheelchair full-time, I was known to pick using my cane throughout the day because I was feeling okay, but by the end of the day I would have much rather had my walker with me instead. Or I would choose to go without my leg braces and regret that decision when I would end up having to walk across the parking lot at the grocery store. Such unpredictable behavior.

Sometimes my strength surprises me and I’m strong enough to open a jar of pickles with a few handy taps to the lid and a rubber grippy thingy to help me turn it, other times weakness takes over and even easy to open packages require a sledgehammer, blowtorch and a weed whacker.

No matter what MS is behaving like for you today, set your face to the wind, your eyes to the skies and don’t stop. You can make it through rain, shine, sleet or snow. Strap on your gear and step out the front door. It looks like sunny skies today…or is it rain? No, maybe it’s snow. Oh, just get out there and take things one step at a time.

MS Gets on My NervesMS WarriorMS Superhero  

About the Author

Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

31 replies
  1. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    I;m having a bladder problem of retention and it is driving me crazy. I know there is an answer but not where yet. I have seen a few people in our hospital and something will come from that. But in the mean time I just have to put up with it.

  2. indulge
    indulge says:

    Exactly Penelope. I certainly cannot predict how my day will go. Plus, as soon as a challenge arises my brain says stop!! This makes any sort of movement like ploughing a field. Thankyou for your understanding.

  3. Franz Schelling, M.D.
    Franz Schelling, M.D. says:

    Sorry, but MS needs not to remain unpredictable! To end being an occult science, MS research must yet comply with the laws of logic and admit the power of deductive reasoning.

  4. Mary Jane Guidry
    Mary Jane Guidry says:

    Thank you and wow this is me. I have only one aid (my wonderful husband). I have my first appointment with a MS neurologist on 7 Sept. I’ve had 3 MRI’s a butt load of labs and a LP. Results showing MS, but waiting over a year for someone to name it…. (other than the Doctor that read them). Have a Blessed and Amazing day everyone…..
    Remember even getting up some days is an accomplishment that you should count.

    • Carla L Broadbent Rogers
      Carla L Broadbent Rogers says:

      Be well. At least when you finally get an answer, You will know what battle to fight. Mine was a 5 year trying to figure out what was wrong….that was in the early 90’s. Stay true to yourself. Deal with this on your terms…Tough…it can be done.

  5. Meeya
    Meeya says:

    Like all your lovely posts – so true, so well put, and at exactly the right moment!
    Always remember that complaining about the rain won’t make it go away – so accept your getting wet, and make the most of it 😁

  6. Della Smalley
    Della Smalley says:

    I agree with Mary,I was going to say what she said MS is sneaky and u could be feeling fine n doing a little around the house and 2-3 hours later ur in bed in pain n not being able to do nothing MS Sucks

  7. Nancy
    Nancy says:

    Spot on, Penelope! I just try to go with the flow so I don’t get frustrated! You truly inspire me!

  8. Leslie Beaver
    Leslie Beaver says:

    It is exactly like that. I never really know until I try something how my body will react. Good food and sleep are no guarantees of anything on the day. Just try, see and adjust. As we must.

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