No one knows everything about multiple sclerosis. Not the person living with it, not the doctors, scientists, nutritionists or even informed family members or neighbors. There is still so much to be learned about this disease that spends its time gnawing aways at a persons nerves for no apparent reason. I think my nerves must be coated in barbecue sauce or something really tasty because they seem to be an inviting feast for the Myelin Munchers.
Over the hundreds, possibly thousands, of years MS has been around, to this day no one even knows what causes it. GMO’s, artificial sweeteners and crazy man-made chemicals didn’t even exist when it was first given a name. Sure, there are a lot of theories and debates on the topic, but no one really knows what causes it. It’s still a mystery. It’s still misunderstood. It still exists.
So when a person approaches me with a know-it-all attitude as to how I should be managing my MS or even curing it, it’s beyond frustrating. Now don’t get me wrong, I know most people are well intentioned and just don’t want to see a person hurting, but not everyone is. It seems most of the ones pushing the unfounded cures or remedies are just people trying to sell supplements, diet plans or medical cures.
They use all the smooth sales tactics to try and hook you in and make a person feel as if they must not really care about getting better because they are still eating pasta, drinking sugar laden soft drinks, or not getting the proper supplements a body needs. Now don’t get me wrong, there are definitely great benefits to eating healthy and ensuring vitamin intake is managed well, but that’s not the cure for MS. It’s not the solution to all that ails you.
I think I am propositioned at least once a week with the latest fix-all solution. Do you know what I do with them? I hit the delete button. It’s that simple.
I have found over the years that for my own sanity and wellbeing, it’s best to simply live my life the way I think I should be living it…not how someone else wants me to live it. I still research. I still read up on breakthroughs and possible answers to this horrible disease, but I take control of my own happiness in the process.
So if I choose to have an enjoyable cup of fresh roasted coffee each morning, do you know what I do? I savor every last drop. If I choose to not be on a certain MS med, then I don’t. If I choose to be on one, then I do. If I choose to take a handful of vitamins each day, I do it. If I choose not to, then I don’t. If I choose to eat a piece of cheesecake, a donut or even a big bowl of momma’s homemade spaghetti…I do it.
No guilt. No remorse. No bad feelings.
I choose to simply live life on my own terms, after all I only have this one life to live. I want to be sure to enjoy it. I would rather appreciate what I have here, now, today, then keep chasing after the unknown and unknowable all the while adding a boatload of stress and financial burdens that I don’t really need in my already crazy life.
But that’s just me…one crazy MSer living in Alabama choosing to control her own destiny.