I woke up exhausted and moving slow

Is it time for bed yet? That was my first thought as I woke up this morning. I glanced at the clock and it was proudly displaying 6:30 AM. That’s way too far away from the sun going down and me climbing back into bed. I yawned, tried to stretch and yawned some more but only seconds passed. Now the clock says it’s 6:31 AM. At least it’s one minute closer. Maybe I can just lie here another 720 minutes.

Some days I wake up already knowing how my body is going to behave, and I can already tell that mine is going to be moving slow…turtle slow. I have yet to wake up feeling refreshed and chipper, even after my morning cup of coffee. As a matter of fact, I haven’t felt rested in years. I’m not even sure what that feels like anymore.

I used to hate the kind of people who wake up immediately bouncing around with gusto as soon as they open their eyes. Right about now I wish I had a teeny tiny bit of their morning pep and bounce.

So, how do you function when your body won’t function? How do you pull together enough energy to get up and get yourself dressed? What do you do when you have to drag your body through the day as it rebels at any and every form of movement? How do you win the fight with your own body?

People don’t quite understand that kind of MS dilemma and how difficult those questions are to answer. They see our bodies and think that nothing is wrong with us. If only they could take a look at the damage hidden beneath our skin and tucked away in our Central Nervous System. It would tell a completely different story because that’s where the chaos lives.

When your legs are having trouble placing one foot in front of the other to take you where you need to go or your hands contain zero strength as everything you hold comes crashing to the floor, don’t let your inability to do something keep you from living your day.

There’s more to living than walking or holding onto things. Sure MS gets in the way of just about everything we do, but don’t let it steal the one thing that will help you through your day…hope.

Hope for a better today than you had yesterday. Hope for more strength when you are at your weakest. Hope for a day of less pain and smaller struggles. Hope for the tears to be dried up and smiles to take their place. Hope for real, genuine friends to become a part of your journey. Hope for hope!

Be kind to yourself today. Don’t push too hard, too fast. Know your limits and say “no” to people demanding more. No is not a dirty word. It’s a word that will save you from many stressful and unnecessary situations. You are in charge of your day. You are the boss, the head honcho, the big cheese of your body. You get to set the pace, no matter how slow it may seem to others.

Remember, being slow isn’t a bad thing. Don’t forget about the tortoise and the hare. Both set off to win a race which the hare should have had no problems in winning, but the tortoise crossed the finish line first. Be the tortoise today. Use your smarts over your bodies abilities and cross the finish line at the end of the day a winner.

MS Gets on My NervesMS WarriorMS Superhero  

About the Author

Penelope Conway

Penelope Conway
Penelope started Positive Living with MS as a way to help others with MS stay positive in the midst of a terrible disease. She believes that staying positive and holding onto hope is the key to waking up each morning with the strength to get through the day. Multiple Sclerosis may never go away, but neither will her determination and her drive to help others through the journey.

50 replies
  1. Meeya
    Meeya says:

    I absolutely LOVE you for reminding me of the tortoise/ hare story!!
    🐢 Exactly what I needed today… so let’s continue walking together, and stay convinced that we’ll win in the end! 💙

    • Trish Wescombe
      Trish Wescombe says:

      My thoughts exactly today. But I had things that had to be done so got up and did them, even though my leg kept wanting to buckle under me. Bet I can’t sleep well tonight. I just don’t do that anymore 😫😫😫

  2. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thanks Penelope it is. worth living. Take all the good things and remember them and all the bad things to learn from them. Slowly your life will get better for you. Don’t turn down help when it is genuine. If you feel unsure about it check it out from the source or if you can on their web site.

    • Linda Ker
      Linda Ker says:

      You moan & groan all you want! You have certainly earned it! My chronic pain is pretty well controlled lately but when someone I know and love gives me a well-taken opportunity to complain, I generally do!🙄

  3. Tilly
    Tilly says:

    this is so how I felt this morning. on 4th attempt I was able to get off my bed took me nearly an hour to get dressed and downstairs. was debating going out to post cards, then saw the ice on car so came inside again. got some tea and pondered. door bell rang, stranger outside – new neighbour introducing herself, asking me over for drinks at the weekend, invited her in for a chat, and offered her tea, and asked her to carry it through to sitting room. as she left after about half an hour she asked if anything she could do to help, so I asked her if she was going out today and could she drop cards in letter box for me? she said yes and took them for me. so I have a new hope – a new friend.

  4. Monica Bulls
    Monica Bulls says:

    I love the word Hope. I purchased a tree topper for my Christmas tree, it is made out of this gorgeous wire into to word Hope. I have different things around house with the word Hope in it. It keeps me going, because some days I don’t feel like getting up and going…. but I have Hope! Thank you for this message today!

  5. Erin Parker
    Erin Parker says:

    The mighty fatigue cloud looms over each of us on a daily basis and it’s a big old jerk of a symptom!! I for one feel as if I look 30+ years older then I actually am because the fatigue makes me feel like my eyes are sinking deep into my skull, not to mention how I can feel it settling deep into my bones making my whole body feel weak as water.
    One of my doctors recently gave me some interesting instructions that I want to share with you all in HOPES that perhaps this too can help, I want to say I am in no way shape or form a medical professional so please discuss this with your doctor and do your own research on this “perscription”.
    She instructed me to eat 2 raw carrots everyday, purchase a 10,000 lux light and sit in front of it for at least 15 minutes each morning (bright light therapy) and she also instructed me to take 1 1mg Melatonin in the afternoon/evening (from 5:00 pm to bedtime). I have not been able to do all of this in a single day because, well life has gotten in the way, but I will have to say that on the mornings I have sat in front of the light it has “seemed” to help boost my energy. After I did my own research on eating the carrots there were a lot of positive things suggesting that they will help with fatigue/depression, which for me go hand in hand. I HOPE & PRAY this will indeed help me and possibly help you too! We are all in this together, MS will not stop us, no matter how hard it tries!!!

  6. Geraldine Lowrey
    Geraldine Lowrey says:

    I no longer have that awful MS fatigue that hounded me daily for nearly 30 years! Fatigue-free almost two months thanks to Ocrevus infusion. My balance is slowly improving and my walking is slowly getting better. It’s not like waking up and suddenly being able to break-dance or walk a balance beam. But I see little moments. Ocrevus may not be for everyone, but I wish there were something so that all of you on this site could have that little bit of hope I now have.My next infusion is April 5, 2018. No more daily injections or 3X weekly, did both of them for 16 years. Infusion will be 8-1/2 hours of sitting with a needle in my arm, but I look at the positive: nice leather massage chair to sit in, warm blankets, big-screen TV, all the coffee and tea I want. They give me pee breaks, too! Wishing Christmas miracles for all MS-ers here!

  7. Anne Ridge
    Anne Ridge says:

    Right there with you. Some days I wake up feeling less tired, and I know if there’s anything I want to do with this ‘bonus’, I have a couple of hours or less before the usual level of fatigue returns.

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