Sometimes multiple sclerosis wins, but not today

What a tough week so far. I just woke up for the day and here it is 9 AM. That is just so not like me. Normally I will not sleep well through the night and yet still be awake by 6 AM. I tossed and turned though the night listening to a thunder storm (which actually for me is quiet soothing). I’m glad the last few hours that I spent in the bed this morning were actually spent sleeping…I think.

I have felt so much weaker these past few weeks. My body won’t cooperate and my brain seems to have gone on vacation. I don’t like feeling out of control like that.

That’s one thing multiple sclerosis does…it takes away your ability to control much of your life, but at least the things I can control, I’ve got. I can still laugh, smile, find enjoyment in life, cry, worry and wonder about tomorrow.

I often think about where life is heading for me and it does concern me if I allow myself to stay in that place for a long enough time. You can’t do that. Yes, acknowledge the reality you are facing. Yes, allow yourself to go through times of worries, fears and doubts. Yes, give yourself time to grieve if you need it…

But then you HAVE TO shake off the weighty negative thinking and face the day you have TODAY. You only get one today so make it count.

It may be a tough day to handle…but you are tougher than any of the things happening around you. You didn’t ask for this life. You didn’t ask for the struggles, the pain, the storms. You didn’t ask for MS, but since it’s here choose to keep pushing through all the crap that comes with it and find something good to hold on to. There is good in today. You can’t give up on being able to find it. You can’t let MS win.

Keep searching. Keep going. Keep pushing through. I believe in you!

11 replies
  1. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thanks Penelope this is really strange. I just woke up at 9:00 am this morning and felt crap so I don’t what happened. i know we are having some rain but it’s Autumn and heading to Winter so it’s not unusual so it can’t be that. The new suprepug system is working well for me now so it can’t be that either. Maybe I just needed it. lol

  2. Sharon
    Sharon says:

    Blessings to you. Facing having a steriod injection in my SI joint at the local surgery center this morning. Never realized dragging my braced left leg for 27 years could mess up things so badly but looking forward to getting some relief from the pain. You are right just need to soldier through but wouldn’t it be so nice to have a day without having to?

  3. Meeya
    Meeya says:

    My last few weeks were. exactly like yours… with increasing weekness & growing fear.. nearly killing all positive thoughts 😬
    But then I went to see an absolutely amazing performance of HAIR, and it brought back the motivation to carry on..! I can only recommend that “cure”…no side effects! Let the sunshine in, everybody!! ☀🎆🎶


Leave a Reply

Want to join the discussion?
Feel free to contribute!

Leave a Reply

Your email address will not be published. Required fields are marked *