You have been through so much lately. You’ve crossed hurdle after hurdle going from one doctor’s appointment to the next. You’ve made your way through danger more than once in the past year alone. You’ve climbed mountains that no one even thought were scalable and yet you overcame the odds. Every day seems to present itself with challenges, but somehow you find a way to get through them.
Admittedly, You don’t always win. You don’t always cross the finish line at the end of the day, but the most important thing is that you never quit. Sometimes you find yourself questioning everything happening in your life. Sometimes the dreaded questions “why me?” and “why now?” run through your thoughts but they never seem to come with definable answers, only more questions.
What do you do when faced with a life of Multiple Sclerosis? Where do you go from here? How are you supposed to function in an able-bodied world that doesn’t seem to understand the complexities of living with MS?
The answer…you just do it!
You drag yourself out of bed each morning exhausted, weary, overwhelmed, and at times feeling completely defeated, but you muddle your way through the day anyway. Some days are better than others. Some days you can walk, other days you can’t. Some days you find yourself laughing, other days even a giggle seems impossible. But you do it anyway.
Today may be one of those impossible, unimaginably difficult days. I won’t lie to you, life with MS is hard. There are surprises around every corner; some good, some bad.
Sadly, a majority of the awareness campaigns for MS don’t actually tell the world how ugly MS can be. They show the smiles and the brave souls walking their way through a 5k with their arms raised in victory, but what about those who can’t walk. Or the ones that have trouble speaking, breathing, eating, seeing or functioning in a so called “normal” world? Why are those people never seen or shown as the face of MS?
Yes, there have been great strides made in helping people manage their MS symptoms and new treatments are being discovered that help slow its progression down—for that I’m enormously thankful—but when is the public going to see that MS isn’t just an “Oh, well it could be worse” kind of disease? When are they going to be shown the reality of what it actually does to a person’s life and body?
My hope is that some day soon people will see the reason we fight every day, but also the pain we endure. That they will understand just how much we overcome on a daily basis. That yes, we may put on a brave face, but deep inside we carry around an uncertainty of how long we will be able to wear our brave.
Every person fighting MS is brave, every one is amazingly strong, and every one is on a journey of uncertainty. We hope for a better tomorrow but we also hope for a world that will truly see MS for what it really is…a chronic progressive disabling neurological disease that has no known cure.
It’s time we let the public see the ugly side of MS and why we so desperately need a cure.