My multiple sclerosis journey is different than yours

If you enter a start and an end destination into a GPS system, you will be presented with a suggested route for your journey. That suggestion is not permanent. It is merely one option out of hundreds, if not thousands of routes you can take to get to your final destination.

If you decide you want to pass by a certain landmark along the way, or visit every museum in a 15 mile radius of each major city, or take only back roads for a greater adventure, you discover that the trip can easily be re-routed to accommodate those things. The GPS voice immediate starts rerouting as soon as a change is discovered.

We are each on this journey called “life.” Each of us have our own road and our own destiny, after all we are individuals on our own personal journey. The road one person takes is not the same road another person takes. Two different people, two different roads, two different destinies…yet for us, we have this crazy disease called multiple sclerosis thrown into the mix.

What’s interesting to me is that some people with MS try to force others to follow the road they are taking because they think their road is the only road, and dare I say many even think their road is the “right” road to follow in how to live with MS. But that is SO VERY WRONG.

The path each person takes in life is theirs and theirs alone…not anyone else’s. No one can drag you along their road. They can’t carry you piggyback, pull you in a wagon or push you in a shopping cart. The road for your neighbor is different than yours. The road for your sister is different too. The road for your friend, yes, you guessed it, it’s different as well. Your journey, your path, your life…all yours.

Yet when it comes to MS, it seems some people think there is only one road to take. Some think it’s a path following a specific diet, others think it includes a certain medication or treatment, and others think it means doing something that has yet to be proven helpful. Opinions run rampant out there and it can confuse even the most seasoned of travelers.

No matter what other people think, you have to choose for yourself the road that is best for you. Take the time to be informed, lay out your options, ask questions, plan your route, and step out. Remember, you are the one that has to travel the road in front of you…not anyone else.

Don’t get caught up in following the crowd or constantly detouring in hopes of finding a road without difficulties. Potholes, dirt roads, weather beaten paths and speed bumps are all a part of the MS journey. That’s just how it is. 

I made a decision years ago to shut out the naysayers, the overly opinionated critics and the misinformed masses. There just isn’t an easy solution to living with MS and there isn’t a cure either. I chose to not let all of those voices keep me from living life on my own terms. I know my choices may not be popular or even recommended by the professionals, but they are mine to make.

Remember…it’s your journey. You choose. Don’t let anyone guilt trip you into doing things differently than what you believe is best for you. It’s okay, and many times imperative, to put yourself first in this journey.

MS Gets on My NervesMS WarriorMS Superhero


6 replies
  1. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thanks Penelope a very good point. We are on our own journey and no one should tell us differently. they don’t know where we re going. we do have a different end point and our own way of getting there.

  2. Tiffany
    Tiffany says:

    Your right on the money Penelope 🙂 I had to go to the doctor yesterday and of course we had to talk about the neurologist again… I haven’t back to the neuro doc for about 3 1/2 years cause he was very forceful about starting a MS drug and he even tried scaring me into taking it by saying I wouldn’t be able to walk some day. Well he totally turned me off to seeing him, but my regular doc I have now he just asked me again why and listened to me again ( I’ve already told him a couple of times my why ) and he isn’t pushing me its what I WANT and I’ve been really thinking that maybe its time to go back and just see what he has to say cause the MS is defiantly getting worse especially my legs 🙁 but my regular doc was ok with my decisions and this is so comforting that maybe just maybe its time to go to the neuro doc now 🙂 MY ROAD, MY DECISIONS 🙂

  3. Christie Sproba
    Christie Sproba says:

    Amen. It’s so easy to judge another persons choices but in the end how you live your journey is your own decision.


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