Living with multiple sclerosis: will you have a good day with bad moments or a bad day with good ones?

A mosquito woke me up this morning. Do you know how annoying it is to have something you can’t see buzzing around your ears? Bzzzzz, bzzzzz, bzzzzz. I swatted at the air a few times to distract it and make it go away, but each time I did, it just came back again. I’m sure I will find a welt or two somewhere on my arms or neck later on from its bite. Just thinking about it is making me itch.

For the record, since I was a kid mosquito’s have had this weird attraction to me. I have no idea why. I can be in a room full of people wearing tank tops and shorts and I will be the one every mosquito in town comes to have a meal with. I guess I’m just that tasty.

I told someone once that multiple sclerosis is a lot like a mosquito. Think about it…like the mosquito, MS is crazy annoying. You don’t see it as it buzzes about and it won’t go away no matter how much you swat at it. You don’t see its bite as myelin starts to get chewed away, but you sure feel the effects later. Oh, and in a room full of people, you happen to be the lucky one it was attracted to. What a glorious day…NOT!

Who would have guessed we would be such lovable people? I’d rather punch MS in the face than have it bite me again, but I have yet to get it to sit still long enough to knock it out. I think I’ve wounded it a few times, and for that I’m thankful.

This is my life. It’s filled with difficulties, pain, falls, and brain fog moments. It is accompanied by wheelchairs, walking canes, leg braces and urine bags. I wish I could trade it all in for something else, but I can’t…so I live on.

Although life can be hard, it has many beautiful moments mixed in which makes everything worth fighting for. I’ve noticed that you can’t get rid of all the bad things around you in order to just keep the good. There will always be weeds in a beautiful garden, a rotten grape on a fresh picked cluster from the vine and dirt on your shoes.

Good and bad always go together, but from where I sit the bad makes the good so much more beautiful. I appreciate life more now than I did before MS. I value the small things and don’t take the simple pleasures in life for granted any more.

Sure, times are tough and I still cry a lot. I actually broke down in tears this morning while taking a shower, but when I was through, I took a deep breath and dried my tears. That little bit of crying did wonders for my day. It seems it leaked out the pressures in life that had been building up.

I can’t promise you that multiple sclerosis is going away any time soon, but I can promise that you won’t be alone in the fight and that there is something beautiful in the ugliness of a life with MS.

Will you have a good day with bad moments or a bad day with good ones? It’s all a matter of perspective. I love Shel Silverstein and he wrote a poem that explains it all. I have all of his books and will read them when I need a smile to break through the gloominess.

Zebra Question
by Shel Silverstein

I asked the zebra
Are you black with white stripes?
Or white with black stripes?
And the zebra asked me,
Are you good with bad habits?
Or are you bad with good habits?
Are you noisy with quiet times?
Or are you quiet with noisy times?
Are you happy with some sad days?
Or are you sad with some happy days?
Are you neat with some sloppy ways?
Or are you sloppy with some neat ways?
And on and on and on and on
And on and on he went.
I’ll never ask a zebra
About stripes
Again.

MS Gets on My NervesMS WarriorMS Superhero

 

4 replies
  1. Gale Langseth Vester
    Gale Langseth Vester says:

    You picked the zebra poem because of all the Zs Zing around with the mosquitos in the beginning of your post, huh? 😀

    Humor is a great mode of relief whether we’re mosquito- or MS-bait!

    Reply
  2. Peggy Wills
    Peggy Wills says:

    This is so true Penelope! Thanks for this. I’ve been looking at it as a bad day but now can just say it’s a good day with bad moments!

    Reply

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