Some mornings multiple sclerosis makes getting my day started difficult

Have you ever had one of those days when you woke up feeling so bad that you wished the day could just be canceled? That an announcement could be made over the radio…”Today has been canceled due to too many broken nerve signals. It looks like a bad one out there. Stay home and bundled up. We’ll keep you posted on any changes.”

That’s my day already and it’s only just begun. I’m lying here in my bed as I write and dreading the simple act of getting up to do anything productive. I already made my way to the kitchen earlier for my morning wake up juice and know how much of a challenge that was. At least my wheelchair battery was charged and the coffee was set on an automatic timer so there was already a hot brew waiting.

I would really like to just to stay here in my bed surrounded by these fluffy pillows and fuzzy blankets. Can someone just bring the day to me instead? That would be nice, wouldn’t it? But as we know, life doesn’t work that way.

We have to get up and meet our day face to face, eyeball to eyeball. It would be amazing to be able to take out one of those eyeballs with a good strong right hook just to get things started. No matter how much I want the day to come to me or simply stop altogether, I know I have to find the strength to get up and get things going for myself.

Don’t let the fact that you feel bad dictate your day. The pain in my legs this morning is relentless, vertigo is already trying to take over my day and my ability to swallow is challenging. I am actually rearranging my day in my head because I already know that much of what I wanted to get done today isn’t going to happen. I hate having to do that, but a life with multiple sclerosis is filled with changes like that.

My biggest challenge today is getting up, getting dressed and starting my day. I know that normally once I’m up and going, I’m doing better. It’s just trying to convince my body of that fact can be the difficult part. Am I the only one that feels this way? I sure hope not.

Regardless of how you are feeling right now, at this very moment, today belongs to you. Do the things that need to get done and leave the rest for another day. No guilt and no remorse for slowed or delayed progress.

I believe in you and know that you can muster up the needed strength to take on today no matter what you are facing. Pause, take a deep breath, give yourself room to actually smile (yes, that’s possible), and take control of what you can in the chaos. You’ve got this!

MS Gets on My NervesMS WarriorMS Superhero


6 replies
  1. Claire
    Claire says:

    Thank you Penelope … I paused and am mustering strength to carry on with this day. You are such an inspiration to me. Wishing us all courage…

  2. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thanks Penelope this makes sense. I have had a day where I couldn’t even move my legs and clear my overnight bag. This was before I got my spc so it was a greater problem and I haven’t got that again and I hope it will never come back. Fortunately I have a loving wife and help from a local agent that supplies people to help me shower, get dressed and come at night to redress me for bed. They don’t come at bed time but just change me and I got bed at 10:30 or 11:00 pm so I can get 8 hrs sleep.

  3. Harriet Josephson
    Harriet Josephson says:

    I have problems every morning. PAIN. I have to fight my body to get up and take the medication. :It’s nice to know I a not alone.
    Harriet J.

  4. Mary E Slavik
    Mary E Slavik says:

    I agree!! You are not alone! Daily changes in plans!! Sometimes minute by minute changes, but it’s all in an MS Day, so charge on!!

  5. Peggy
    Peggy says:

    Noo your not alone. This is Me (with the exception of the coffee) i did make it to bathroom, brush teeth.. Thank goodness wheelchair is charged nack to bed…But the vertigo! Plans will be changed…


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