A life with Multiple Sclerosis can be a physically challenging, emotionally draining, around-the-clock exhausting and makes for some extremely lonely times. Someone without MS may wonder why that is.
Well, everything we do takes an extraordinary amount of effort to complete and some things become nearly impossible to do. Try going through a day not knowing if you will be able to manage another moment of relentless fatigue, dizziness, muscle weakness, bathroom mishaps, dropping of anything you get your hands on, lots and lots of pain, and feeling as if you don’t have the strength to hold it together for one more second.
I want you to know that no matter what you are facing today or how difficult things become tomorrow…you are not alone! There’s an army of us warriors standing shoulder to shoulder, together in this fight.
If you cried in the shower this morning because you were so unbelievably overwhelmed with the load you have to carry and feel as if the whole world has flipped upside down, inside-out and turned up on its end…you are not alone. Somebody else cried, too.
If you find yourself staring at piles of laundry, a sink full of dishes, shoes tossed in the hallway, unmade beds, dirty toilets and are fighting the guilt of the day coming to an end with everything still in the same place it was when you woke up…and then you find yourself wondering “what did I do today?”…you are not alone. Somebody else wondered, too.
If you miss running with your kids, attending graduation parties and baby showers, standing in long lines waiting for tickets to the best show on earth, and joining in on all the fun everyone else seems to be enjoying…you are not alone. Somebody else misses it, too.
If you woke up exhausted after a full night of rest and are trudging through your day longing to go back to bed so you can sleep a little bit longer…you are not alone. Somebody else did, too.
If you wished you could still be part of the buzz around an office, the business of deadlines and bad morning coffee, cranky bosses, nosey employees and water cooler gossip…you are not alone. Somebody else wished it, too.
Maybe not every person’s experiences with MS are the same and the difficulties you face are different from mine, but I am convinced there is someone, somewhere in the world who is going through the same overwhelming moments as you. Just because you don’t hear about them or know them personally doesn’t mean they don’t exist.
It’s okay to feel as if you’re falling apart because in many ways you are…well, your nerves are so I guess that’s the same thing since they are a part of you. Eventually things will get better and you will find new ways of coping with all the changes happening in your life, I can guarantee you that, but in the moment or in the heat of the battle it may not seem like it’s even possible.
Right now the days may seem long and the pain may outweigh the joys. It’s tough…I get it, but it’s not impossible. Let’s carry this burden together. Let’s offer a listening ear, a gentle hug or a nod of understanding to those beside us. We need each other. That’s how our strength grows.
It’s okay to ask for help and to talk with your doctor about ways to help you manage the emotional chaos you find yourself in. Don’t try to go this alone. Hang in there. There is still hope for a better tomorrow. I believe in you even when you don’t believe in yourself. You are going to get through this. Take a deep breath, shake off the gloomy’s, hold your head up, and don’t be too ashamed to reach out for help. We all need a helping hand.