Sometimes a life with multiple sclerosis can feel like everything is falling apart

A life with Multiple Sclerosis can be a physically challenging, emotionally draining, around-the-clock exhausting and makes for some extremely lonely times. Someone without MS may wonder why that is.

Well, everything we do takes an extraordinary amount of effort to complete and some things become nearly impossible to do. Try going through a day not knowing if you will be able to manage another moment of relentless fatigue, dizziness, muscle weakness, bathroom mishaps, dropping of anything you get your hands on, lots and lots of pain, and feeling as if you don’t have the strength to hold it together for one more second.

I want you to know that no matter what you are facing today or how difficult things become tomorrow…you are not alone! There’s an army of us warriors standing shoulder to shoulder, together in this fight.

If you cried in the shower this morning because you were so unbelievably overwhelmed with the load you have to carry and feel as if the whole world has flipped upside down, inside-out and turned up on its end…you are not alone. Somebody else cried, too.

If you find yourself staring at piles of laundry, a sink full of dishes, shoes tossed in the hallway, unmade beds, dirty toilets and are fighting the guilt of the day coming to an end with everything still in the same place it was when you woke up…and then you find yourself wondering “what did I do today?”…you are not alone. Somebody else wondered, too.

If you miss running with your kids, attending graduation parties and baby showers, standing in long lines waiting for tickets to the best show on earth, and joining in on all the fun everyone else seems to be enjoying…you are not alone. Somebody else misses it, too.

If you woke up exhausted after a full night of rest and are trudging through your day longing to go back to bed so you can sleep a little bit longer…you are not alone. Somebody else did, too.

If you wished you could still be part of the buzz around an office, the business of deadlines and bad morning coffee, cranky bosses, nosey employees and water cooler gossip…you are not alone. Somebody else wished it, too.

Maybe not every person’s experiences with MS are the same and the difficulties you face are different from mine, but I am convinced there is someone, somewhere in the world who is going through the same overwhelming moments as you. Just because you don’t hear about them or know them personally doesn’t mean they don’t exist.

It’s okay to feel as if you’re falling apart because in many ways you are…well, your nerves are so I guess that’s the same thing since they are a part of you. Eventually things will get better and you will find new ways of coping with all the changes happening in your life, I can guarantee you that, but in the moment or in the heat of the battle it may not seem like it’s even possible.

Right now the days may seem long and the pain may outweigh the joys. It’s tough…I get it, but it’s not impossible. Let’s carry this burden together. Let’s offer a listening ear, a gentle hug or a nod of understanding to those beside us. We need each other. That’s how our strength grows.

It’s okay to ask for help and to talk with your doctor about ways to help you manage the emotional chaos you find yourself in. Don’t try to go this alone. Hang in there. There is still hope for a better tomorrow. I believe in you even when you don’t believe in yourself. You are going to get through this. Take a deep breath, shake off the gloomy’s, hold your head up, and don’t be too ashamed to reach out for help. We all need a helping hand.

MS Gets on My NervesMS WarriorMS Superhero

 

15 replies
  1. Vero
    Vero says:

    Hello from Argentina, as you said, MS is the same anywhere and so are the experiences, we are all warriors.💪🤗

    Reply
  2. Lisa
    Lisa says:

    My multiple sclerosis has gotten so bad I live on the couch. I’ve only been out three times this past year I am so fatigued and I feel like I’m getting worse and worse all the time. I can no longer work I was a nurse for 35 years and had to leave my profession in 2014. I am so deconditioned that when I try to walk I’m so short of breath and fatigue and I keep pushing ahead. I no longer can cook I’m just existing. I hate my life I hate everything that’s going on with my body I just want my old life back

    Reply
    • Michelle L Kelley
      Michelle L Kelley says:

      Lisa,
      Sweetheart if you ever need anybody to talk to I am here. I can relate to you. I have temporary custody of my 3 and 4 year old granddaughters right now. My daughter her name is Lisa as well, is in rehab fighting her own monster. She is doing phenomenally well. I have been numb from my shoulders to my toes with pins and needles and pain in my spine for 4 days. Trying to get to the pool just so that the children can be outside like normal children. And then I get so spun out from the heat once I step out of the pool I lose my ability to speak. You keep your head up girl. Much love Michelle

      Reply
  3. Abeer
    Abeer says:

    Last night I cried hard I wish a magic came and end my pain .. am still young am missing a lot of joy .. I asked allah to mercy me .. I believe that any thing happen to us is for a reason .. I always act I am strong but my heart is broken .. the hope in there we shouldn’t give up .. your words touch my heart .. together we are stronger ❤️

    Reply
  4. Jenni Walden
    Jenni Walden says:

    You hit the nail on the head, Penelope, i’m struggling so much at the moment & feel so alone, unsupported in work, have fallen so many times my knees are a very interesting colour, & i just need a break…reading this makes me know i am not alone and that is okay to cry… Thank you 🥰 xxx

    Reply
  5. Beverley
    Beverley says:

    New to this world of MS and feeling very low that active life is over your article described how I feel perfectly.
    Thank you for sharing it. I long to be me again I love adventure, being spontaneous this was our time to enjoy life since children are grown but at the moment it seems this won’t happen.

    Reply
  6. Elizabeth
    Elizabeth says:

    Wow…did you ever hit the nail right on the head. I just want to feel “normal” again…but its difficult to remember what that is. I am blessed with an AMAZING Fiance, Family and friends. It’s just hard to do everyday things, focus, be motivated, not hurt and not complain. Praying for better days.

    Reply
  7. Anjie
    Anjie says:

    Greetings

    Warriors

    I enjoyed summer walks and running each day but its all faded memories but like most I am still hopeful. You just have to be

    Reply
  8. Fiona
    Fiona says:

    Thanks Penelope

    I’ve had a rough week, and didn’t realise how overwhelmed I was until I burst into tears at the end of my physical therapy session.

    So, if anyone is missing a crying buddy I’m here!

    Reply
  9. Jan
    Jan says:

    Penelope you seem to know exactly what I’m going through. Thank you for all your encouraging words and helping me not feel alone with MS. Jan 🥰

    Reply
  10. Joy
    Joy says:

    Thank you for this Penelope! I’m so grateful to have others who get it! It’s been a rough few weeks-the weather in the Midwest has been crazy-30 degree temperature differences in a day are wreaking havoc on me! My husband is so supportive, but I don’t think anyone who isn’t living this can ever really understand how HARD we work to just function & “look ok” every day! Thank you for voicing what we feel 💜

    Reply
  11. Jackie
    Jackie says:

    Thank you so much for the encouraging words. Oh boy I often just have a cry and feel sorry for myself because of what I have been dealt. But then there are the better days. Thank you for all your effort.

    Reply

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