Choose your own adventure…

I try so hard to get through my days with a bit of dignity and grace, yet somehow multiple sclerosis voids those plans as soon as I wake up. Sometimes I don’t even make it out of bed before my body decides to take off on a different road into the unknown. You would think I would have the unknown fully charted by now.

Do you remember those books where you could pick your own adventure to end the story with? You could navigate through the story and have things end with happy moments, disasters or surprises. The problem with my story is that there is never a suitable outcome to pick from.

Yesterday I had a choice of kitchen disasters, bathroom mishaps, vehicle troubles, and brain fog mistakes. But just when it came time to choose my adventure things shifted and I ended up with overdue bills needing to be paid, a lack of energy, muscle spasms and pain through the roof… more like a gazillion on the pain scale. I didn’t actually get to choose any of the chapters and found myself stuck in a perpetual cycle of ups and downs, blurred vision and ringing in my ears.

It’s a new day today so I’m believing for a better day, but so far I don’t see things shifting in my favor. I have already had to restart a load of laundry that soured in the washing machine because I let them sit wet for too long. I need to patch a hole in the wall in my hallway because I didn’t turn properly in my power chair. I also need to clean up a coffee disaster I created when I spilled the coffee grounds all over myself and the floor.

Maybe I just need to go back to bed and try again tomorrow. At least I woke up today with a smile and even though my MS life is challenging, it doesn’t win. I may not be able to choose my own adventure, but I do get to choose my own responses to everything that happens. My response will always be one of gratitude and thankfulness. Yes, oddly enough I smile my way through the pain. Not a fake smile either. It’s more a smile of determination and gutsy grace. We all have to push through the obstacles that pile up in our path. Even when we end up with a lot of difficulties and pain. We are warriors that way.

MS Gets on My NervesMS WarriorMS Superhero


5 replies
  1. pam
    pam says:

    I agree it is all about attitude.I think maybe the good Lord lets us make messes to clean up so we just keep moving and being challenged.

  2. Rodger Ashton-Smith
    Rodger Ashton-Smith says:

    Thank you Penelope you seem to have similarly problems that I have been through but I have a supportive wife that can help when needed. But it has been bloody hard on her so we have got a group that helps with dressing and showering for me that has taken a load off her. And with the spc I have has cleaned up the lower body problems well. So we are getting there slowly and carefully.

  3. bunny
    bunny says:

    you are a sorceress with words.
    AMAZING!!! you have a way of always writing something that hit home. it can just be one sentence that makes a difference and YES you
    do have an impact on all of us that read your posts. thank you for the time and thought you put into it.
    i’m sure there are days you’re not up to it, but you do it anyway.

    today’s sentence for me was that sometimes the adventure chooses us and it’s up to us how we respond.

    oh and the coffee LOL laughing with you. totally can relate. mine is the involuntary hand/arm tremors.
    just out of nowhere JERK OR SHAKING coffee grounds everywhere!! what can you
    do but ,me curse-shame shame, and laugh. you rock 🤩🤩🤩

  4. Janet Stanzel
    Janet Stanzel says:

    Couldn’t have said it any better!
    I’m having one of those days today but just blame it on the weather! 😉 Everyone else does so I thought I’d join the club…no admission required and everyone welcome. 😊


Leave a Reply

Want to join the discussion?
Feel free to contribute!

Leave a Reply to pam Cancel reply

Your email address will not be published. Required fields are marked *