When the simple things are no longer simple

Most people don’t have to think about doing the simple things in life like answering the door when an unexpected visitor arrives, picking up some toilet paper at the grocery store or helping out a friend until something like multiple sclerosis comes along and messes with those seemingly simple tasks or plans. Sure, they have to juggle other plans around in order to fit the sudden change into their day, but most of the time those shifts are simple to make.

For me, in order to “run errands,” the timing has to be planned perfectly to ensure I have the energy for the remainder of my day. Not planning can end in disaster…meaning, can end in me vegging on the couch for hours just to regain enough strength to help me manage the remainder of my day. Some errands can set me back days…not just hours.

It’s that way with just about everything. I have to think about the simple things more than people should. For example, take the act of walking. That may seem like a strange thing to have to think about, but when I stand up to walk, I have to make sure I have the proper supports around me to keep from falling down. Then I have to concentrate on each step, movement, leg shift and foot lift. It takes GREAT effort and tremendous thought to do something as simple as walk.

If I need something in the kitchen, I can’t just jump up and get it. If I drop something on the floor, many times that item will remain where it landed until I have the strength to reach down and pick it up. By the way, that can mean it will remain on the floor for days. If someone comes to the front door unannounced, it takes so much energy to transfer to my wheelchair and make my way to the door only to find out it’s a solicitor wanting me to try their restaurant take-out service, that’s why most of the time I just don’t answer it.

When MS comes into your life, the things most people take for granted become something we are grateful to still be able to do. We know that one day everything will change, the unexpected will happen, life will throw us a curve ball, and shifts will have to be made to even be able to do the simple things. No amount of planning prepares you for those kinds of changes.

If you find yourself frustrated because you need to fill up your gas tank on your way to work today or because you need to pick up some cheese for tomorrow’s taco dinner, stop and remind yourself that you are still able to do those things…and be grateful for the little things no matter the inconvenience.

Don’t take anything you are still able to do for granted. Those things may take extra time to work through or you may have to get creative in the way you do them, but in the end you will have accomplished something greater than great. You will have done something some people are no longer able to do.

Don’t give up, don’t give in and keep going while you can. That’s what makes you an MS Warrior. Plan B, C, D, and sometimes even Z, ZZ, and ZZZ have become a part of my everyday life and I’m okay with that. I will keep trying, keep going, and keep shifting with the changes until I no longer can.

MS Gets on My NervesMS WarriorMS Superhero

 

7 replies
  1. Peggy
    Peggy says:

    Love this as it describes what I go through! Soo thankful for my Husband and all that he does for me. The shopping, cooking, cleaning, picking ME up off the floor when my legs just fold up (or down?) As i attempt to transfer to the wheelchair. I drop things an they just stay there until I get my picker-upper (Great tool!) Or he becomes agitated and picks it up. We got a Ring doorbell and can see or talk to the person without opening it LOVE IT!😉 he has set up soo much to make my life easier! I know he is thinking about when he’s gone (literally!) But I can’t think about that 😢 i just keep trying charging on (or powering my electric wheels) Thinking of how bad it can be…it’s hard but others have it worse…

    Reply
  2. Tiffany Lanthier
    Tiffany Lanthier says:

    YOU ROCK PENELOPE!!!!!!! I really enjoy your posts cause so much relates to me and what I go thru 🙂 I just wish others understood this, my family included 🙂

    Reply
  3. Rodger Francis Ashton-Smith
    Rodger Francis Ashton-Smith says:

    Thanks Penelope, it seems to be the whole problem with this mess. We do need the help from others but we have to find a better way of doing things that suit us. It can be frustrating when able people do this and we have to work around them.

    Reply
  4. Carla L Broadbent Rogers
    Carla L Broadbent Rogers says:

    I guess Simple and normal were never meant to be in the MS handbook. But we are all crafty people and we have become experts at reinventing. The wheel, the light bulb…really!?! Watch me in my wheelchair…..I Simply Shine. Be well.

    Reply
  5. S Zane
    S Zane says:

    This is true. It’s hard to work around this disease,and relearn how to do normal everyday tasks a different way. Being more of a laborer type,I can’t do what I used to. I really can’t do much,but I keep up giving the old college try. I’m grateful my kids are raised,and out on their own. So here’s to everyone going through MS! Chosen because we’re tough.

    Reply
  6. Chris
    Chris says:

    Oh so true! Thank you for helping us make our situation more “normal”. Blessings on your day, may it be filled with energy, focus & strength!

    Reply
  7. Jan
    Jan says:

    You are so right again, Penelope. I can usually get through a few hours each day after my meds kick in and then I’m so exhausted and done for the rest of day. But I did get out to the store or a Dr appt for which I am grateful. Keep on going MS Warriors!! Jan 🥰

    Reply

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