I’m sitting in my favorite chair this morning as I write my thoughts down to start my day. The air is cool…thankfully. My favorite throw blanket is lying across my lap and there’s a fire going in the fireplace. Don’t get too excited…it’s an electric fireplace with fake flames, but the heat is real when I turn it on. That’s what counts, right? I have a hot cup of coffee with me and my computer’s in my lap.
That’s a perfect morning for me. I enjoy my time of quiet solitude to collect my thoughts, reflect on times past and prepare myself for the day ahead.
Many of you live with a stable condition of multiple sclerosis. Your days are fairly predictable and you are able to plan ahead easily. You know what to expect and how to adjust to the changes throughout the day. Then there are others, much like me, who have such unpredictable days, you can’t plan well because MS changes too drastically from one moment to the next. Even in your planning you don’t plan well.
MS is a disease of change. Some deal with smaller changes, but it’s all still change. It would be so nice to know what a day will be like, to plan and be able to keep those plans, to go to parties without leaving early, to spend time with friends without falling asleep on them, to spring clean the house, wash and detail the car, and cook a holiday meal. It’s been years since I was able to do any of those things. I try though, and that’s what counts. I try to do as much as I can when I can and leave the rest to tomorrow.
If you can’t adapt to change, you will find your days hard to get through. For some, it’s not easy learning to go with the flow…to ride down the river of life rather than fighting with it. It’s okay to end your day differently than you expected, leaving things still to be done. Don’t get frustrated because your house needs to be vacuumed and yet you don’t have the energy to do it at the moment. I don’t know of anyone with an un-vacuumed house that has stopped the world from spinning causing it to tilt on its axis thus ending civilization as we know it. Your day will go on and the vacuuming can wait for another day.
Choose the important things in life to be your focus rather than the things of little importance. I’ve learned that many of the things that I thought were important really weren’t. Use your time wisely and know that YOU are what’s important, not what you can or cannot do. You are valued, treasured and needed. So today, step into the changing room, put on your MS superhero cape and step out into the world. You got this!!!