Multiple sclerosis had been whittling away at everything I was able to do making a productive day difficult.
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About Penelope Conway
It was November 21, 2011, that Penelope Conway was diagnosed with Multiple Sclerosis. She had no prior symptoms or signs and onset was quick. Within three weeks time, she was experiencing numbness to the right side of her face, right torso, and both legs; was having bladder and bowel dysfunction; and optic neuritis set in causing her to lose color in the left eye along with giving her blurred vision. The doctors didn’t take long to come to a diagnosis. After an MRI and a spinal tap, it was clear… this was Multiple Sclerosis.
She had a hard time coming to terms with being diagnosed with a chronic illness. After all, she had plans, and MS was not one of them. And what was MS anyway? She spent the next few months researching and digging for information. The information she found was scary, but deep inside, she knew that this was not the end to her life or to what she was capable of becoming. Many nights, she cried and was still in denial, but as the months passed, she began to see that even though she was in pain every day and her body limited her, there was still a life to be lived… and she was determined to live it.
Entries by Penelope Conway
Your life will look different than other people’s lives. You will do things different, move different, talk different, eat different, and be different.
You can call me a bad person if you want, but when people are rude, hurtful and insensitive to someone with a disability, it infuriates me. It doesn’t matter what the disability is either. Actions like that are self-centered and simply uncalled for.
This morning I woke up before the sun. I didn’t plan on it but the pain in my body and muscle spams wouldn’t let me sleep. So how do I get through a day when I’m sleep deprived, in pain, have constant muscle spasms, and am miserable?
It’s hard to believe a new year has begun. As they say “out with the old, in with the new,” right? As I reflect over the past year, I realize I have experienced some truly wonderful, beautiful moments. Times that made me sing even though I can no longer carry a tune. Times that gave me great joy and created memories that I will hold on to for the rest of my life.
What amazing creatures us MSers are. I wonder what new superpower I will discover hidden away in the shadows of my day.
Somehow after I contemplate throwing my hands up in surrender and giving up, I find a bit of hope tucked away in the corner, a grin hiding in dust and a giggle sneaking around
Multiple Sclerosis affects everyone differently, but even in our differences we have similarities. It’s interesting to sit in a room full of people living with MS and hear their stories. Some make you cry, some make you laugh, but they all make you thankful because you know you are surrounded by people who understand. I […]
I understand how it feels to be drowning in medical bills, strained relationships, physical and mental exhaustion, stressful decision making, and demanding responsibilities. Add to that the fact that I’m living every second of every day with multiple sclerosis and I might as well just crawl back into bed each morning before the sun even comes up and call it a day.
A life with multiple sclerosis is hard. There’s no nice way to put it. I could lie and tell of all the cool things life brings to sway you to the opposite side. I could give you a bunch of blessings and sweet moments that have happened along the way to change your mind but I would be fooling myself. Those people that say life isn’t hard, you’re just living it wrong…I’d like to smack them upside the head or strangle them. They aren’t living in reality.
- Simplify your life.
- Watch your thoughts. What goes in, comes out.
- Surround yourself with positive people.
- Take time for yourself, even if it means saying "no" to others.
- Be grateful, laugh and celebrate life.
- Think more about what you have as opposed to what you don't have.
- Help others.
About Positive Living with MS
Positive Living with MS was started by Penelope Conway after she was diagnosed with MS. She found few resources for positive encouragement; to laugh, cry, share, and just feel normal in the midst of a life of chaos; so she decided to start something herself. Positive Living with MS was birthed out of Penelope’s desire to show others that regardless of the challenge, we can all enjoy life to the fullest and find a smile in the storm.