Entries by Penelope Conway

You can’t compare one multiple sclerosis journey to another

Have you ever had something like this happen?

You share your multiple sclerosis journey with someone and they proceed to tell you how their approach to MS or some other ailment is the only way you should be living? That because you go to doctors and take meds, you are doing it all wrong? That you wouldn’t have the struggle you are having if you would just do things their way? That if you only ________ (fill in the blank) you would feel better?

Multiple Sclerosis has given me numerous superpowers

Multiple Sclerosis has given me numerous superpowers. I have been known to fly across the room from time to time. I can create some truly amazing take-offs and landings too. I teleport things like my keys, the TV remote and even my phone to strange places in order to keep them safe from thieves. Who would think to look for those things in the dishwasher, microwave or the freezer. And one ability that has become annoyingly prominent lately is supersonic hearing. Really, it’s true.

What does a Multiple Sclerosis warrior look like

Multiple Sclerosis warriors come in all shapes and sizes. You normally can’t pick them out from the people standing in line at the grocery store or from those seated in a restaurant…but they are there. MS warriors are those amazing people who charge into battle when they have every right to hide under the covers. They don’t fit into any particular mold, wear a noticeable badge of honor or win any bravery awards. But brave…oh, they are!!!

Some say that I’m broken

Have you ever gone to the beach and taken time to truly examine the seashells that wash onto the beach? Some people are avid shell hunters and spend countless hours searching for the perfect ones. They are looking for beautiful coloration and formation. They don’t even contemplate collecting the broken ones, after all who wants a broken shell sitting on their coffee table?

Dear Multiple Sclerosis, you’ve messed with the wrong person

Dear Multiple Sclerosis,
I want you to know that you are not the boss of me. Sure, you have made my life a living hell. You may have caused me countless tears. You may be the reason I had to quit my job, have lost seemingly great friendships, and am facing unprecedented financial difficulties. You may make my body weak, my thoughts a jumbled mess, my body tremble and my vision blurry, but you will never, and I mean NEVER, have the satisfaction of stealing my hope.