Entries by Penelope Conway

The multiple sclerosis phantom itch is real

I have this incessant itch on my upper left arm that will not go away. I try to scratch it, but oddly enough I can’t seem to find its exact location. Just when I think I’ve found it, nope…I’m wrong. I have to be careful not to scratch that area too much because my arm is completely numb, has been for a few years now, so I could easily rub it raw without even realizing the damage I’m causing.  

Changing with the unexpected

I’m sitting in my favorite chair this morning as I write my thoughts down to start the day. The air is cool. My favorite throw blanket is lying across my lap and I’m watching some deer in my back yard munching on dew soaked grass. I have a hot cup of coffee with me and my computer in my lap…

You can’t give up

Life is not always full of rainbows and sunshine. It’s not all puppy dogs and lollipops. I have found over the years that it can be cruel and downright painful. It can be filled with heartaches and headaches. It has this crazy ability to knock you off your feet and leave you in a puddle on the floor. You then have the task of picking up all the pieces and making sense of everything.

Do you want to know who your real friends are?

The world is full of selfish people. Society has become so consumed with the aspiration of becoming famous and important that they overlook and ignore the countless hurting people all around. People with disabilities are often overlooked and many times pushed aside as bothersome. Ears have been closed to their cries and eyes have been shut to their pain.

I would love nothing more than to punch multiple sclerosis in the face

When you see me, you may see my hair fixed up nicely, my makeup looking flawless, my clothes neatly pressed and my shoes coordinating with my purse. I may have everything in place from head to toe including the smile I put on and the positive attitude I carry. But underneath all the layers, below the wheelchair, urine bag and leg braces, the real me exists.

I don’t know what tomorrow will be like or even the next few minutes

Have you ever gone out to your car on a cold frosty morning in a hurry to get somewhere? You crank the car and turn the defrost up on high in hopes of melting the ice covering your windshield but it’s just not thawing out quick enough for you. So you do what we have all done at one time or another, you put the car in gear and try to make your way down the road with only a small section of the window defrosted. It’s not easy to do but you know the window will keep thawing out as you drive…

Multiple Sclerosis is not your fault

I don’t know why people like to point fingers when something goes wrong. It seems like a common occurrence these days. I know when it come to multiple sclerosis people like to point fingers at something or someone as to the cause. I have heard many crazy as well as plausible theories myself. Maybe you’ve heard some of them too. Things like…