Words. We all use them. When we aren’t speaking them out loud, we are thinking them in our heads or writing them down on scraps of paper. Not one day goes by without the use of words. My words, though, seem to come out all mixed up…
Author Archive for: penelope
About Penelope Conway
It was November 21, 2011, that Penelope Conway was diagnosed with Multiple Sclerosis. She had no prior symptoms or signs and onset was quick. Within three weeks time, she was experiencing numbness to the right side of her face, right torso, and both legs; was having bladder and bowel dysfunction; and optic neuritis set in causing her to lose color in the left eye along with giving her blurred vision. The doctors didn’t take long to come to a diagnosis. After an MRI and a spinal tap, it was clear… this was Multiple Sclerosis.
She had a hard time coming to terms with being diagnosed with a chronic illness. After all, she had plans, and MS was not one of them. And what was MS anyway? She spent the next few months researching and digging for information. The information she found was scary, but deep inside, she knew that this was not the end to her life or to what she was capable of becoming. Many nights, she cried and was still in denial, but as the months passed, she began to see that even though she was in pain every day and her body limited her, there was still a life to be lived… and she was determined to live it.
Entries by Penelope Conway
Once upon a time a daughter complained to her father that her life was miserable and that she didn’t know how she was going to make it. She was tired of fighting and struggling all the time. It seemed just as one problem was solved, another one soon followed…
I think I slept a total of 3 hours last night if I were to add up all the time I wasn’t actually watching the minutes tick by. Boy, can I feel it already today too. Nights like that make for some really interesting days. You will find me yawning in the shower, as I work, and even as I eat. It’s funny how that happens…
I have come through many days feeling emotionally as if I were hanging by a thread. That kind of feeling can be scary and so very real. It’s hard to talk about things like that with someone who isn’t where you are in the middle of MS and life.
I want to talk about a topic that many people either avoid or choose to ignore. It’s something I see very little support for yet affects over half the population of people living with Multiple Sclerosis as well as those living with other chronic illnesses like Parkinson’s, ALS, Lupus, EDS, Asthma…too many illnesses to even list.
My right hand has grown increasingly weak. At first, it had just a slight tremor that was annoying but manageable. Now even when I’m holding it in a resting position, thankfully the tremors aren’t as prominent but it has a tendency to curl up making that hand a bit useless. I have trouble even pushing a key on my computer or holding onto a spoon…
I have an MS (Multiple Sclerosis) Degree and didn’t even know I was studying for it. It’s not an honorary degree either. It’s a real life, up close and personal, in your face degree. One of those “I studied my butt off” degrees. My next step is to get my Doctorate…and that’s not too far off…
Multiple Sclerosis has given me numerous superpowers. I have been known to fly across the room from time to time even without my superhero cape on. I teleport things like my keys, the TV remote and my phone to strange places in order to keep them safe from thieves. Who would think to look for those things in the dishwasher, washing machine or the freezer?
I broke my mother’s favorite vase when I was 10 years old. I remember the moment it fell to the floor. It was as if everything was happening in slow motion. I tried desperately to catch it, but my hands just weren’t quick enough.
I have noticed that people living with multiple sclerosis get hurt in some of the weirdest ways. I know for me, I’ve had my fair share of bruises, broken bones and crazy predicaments that I wouldn’t have experienced any other way…
- Simplify your life.
- Watch your thoughts. What goes in, comes out.
- Surround yourself with positive people.
- Take time for yourself, even if it means saying "no" to others.
- Be grateful, laugh and celebrate life.
- Think more about what you have as opposed to what you don't have.
- Help others.
About Positive Living with MS
Positive Living with MS was started by Penelope Conway after she was diagnosed with MS. She found few resources for positive encouragement; to laugh, cry, share, and just feel normal in the midst of a life of chaos; so she decided to start something herself. Positive Living with MS was birthed out of Penelope’s desire to show others that regardless of the challenge, we can all enjoy life to the fullest and find a smile in the storm.