Entries by Penelope Conway

Multiple sclerosis can be a lonely disease.

I don’t think the world will ever understand that we don’t need their unfounded, unproven, misinformed opinions or their self-help miracle cures, mineral water and diet plans. We simply want to know that they care. Yes, it really is that simple. A kind word, a smile, a helping hand…you’d be amazed at just how much they actually help get us through the difficult times.

It’s not easy to become a multiple sclerosis hero

Multiple Sclerosis heroes come in all shapes and sizes. You normally can’t pick them out from the people standing in line at the grocery store or from those seated in a restaurant…but they are there. MS heroes are those amazing people who charge into battle when they have every right to hide under the covers. They don’t fit into any particular mold, wear a noticeable badge of honor or win any bravery awards. But brave…oh, they are!!!

My multiple sclerosis brain fog moments

I lose words more than I lose my car keys…and they’re harder to find too. I think conversations with me are more like a game of charades than actual conversations. I’m sure it frustrates those I’m talking too as they try guessing the word I’m fumbling around in search of. It can become quite comical too as I point, make hand motions and slap my leg in an attempt to help the process along.

Fight with me in my multiple sclerosis journey, not against me

All right, let’s say this once and for all and get it all out in the open. I have multiple sclerosis. It is an incurable chronic progressive disease. There are some great strides being made towards finding a cure, but at this time there is no known cure. This disease will continue to worsen in my life as the months and years pass by. It is extremely unpredictable so it’s possible it could take an entire lifetime for my body to get to a point of causing me major problems or it could happen tomorrow.

Some mornings I wake up on empty and lacking strength

You would think a night in bed would be helpful for someone with multiple sclerosis. It would be amazing to have the energy in my body build up overnight like that. This way by the time I wake up I would have the strength needed to pull the covers back and drag my legs over the side of the bed to start my day but many times as soon as my feet dangle over the side of the bed I’m ready to go back to sleep.