The struggles dealing with multiple sclerosis
I woke up yesterday morning to a storm blowing outside…rain, wind, thunder. Actually, it had been raining for days. Today the morning temperature has dropped making it a bit chilly out but humid… which is my enemy. It’s the kind of weather that makes me want to curl up in my favorite chair, put a good movie on the TV and veg with a cup of coffee and my soft cuddly blanket.
Interestingly enough, the harshness of the wind cleared up just as quickly as it had started. It’s still dreary out, but much calmer than before and today the sun should be out. Did I mention that the air is humid? Humidity and my body don’t go together very well. Neither does heat or cold. Cold stiffens me and heat weakens me.
I call the struggles we go through in our life with multiple sclerosis “storms.” Storms because although they have the potential to turn our lives upside down, send everything into chaos and create massive devastation, they never last forever. Every storm has an end, no matter how fierce or destructive it may be.
If you are in the middle of a storm right now, hang on. The wind may be blowing and the rains may be pouring down, you may be experiencing a volcanic eruption or even an earthquake that is breaking apart everything around you, but your storm will end. The winds will cease, the trembling will stop, the clouds will clear, and the sun will shine once again.
I know it’s hard to see any good when everything around you seems to be falling apart. It’s not easy to rest when you’re dealing with a chronic illness and everything that comes along with it. Most of the time, you feel like you are living in a perpetual season of storms, pains and heartbreaks. But in the middle of all the symptoms and the craziness, know that you are not alone.
I have an appointment to see my doctor today. It’s just a check up so I’m not expecting anything unusual. Next week I will see my urologist to make sure things are okay with my urostomy. I have already had an ultrasound so he will have the results to go over with me. Thankfully since having my bladder removed I’m doing much better than when I was dealing with a SPC (suprapubic catheter) to drain my bladder. My bladder issues are much more manageable and easy to handle by myself now. I have even thanked my doctor for it… which doesn’t happen often.
Today can be the best of times or the worst of times, but you get to choose hope over fear. Hang on to hope for a better day today than yesterday.
Hope is what gets you through the struggles and helps you rest when you’re weary. Hope is what wakes you up in the morning and pushes you through your day. Hope is what clears the cloudy skies allowing the sun to shine in the middle of a downpour. Hope is what lifts you up when you’re too weak to even move.
Even if you don’t see the good right now in what you are facing, hang on to hope! It’s there even if it’s hiding in the shadows. There’s a twinkle just over there… do you see it? That’s hope!
1. Simplify your life.
yup you’re right, living with the ms monster is like having every type of weather inside your body. all we can do is hope & pray for sunny 😎 calm days.
So true. Thanks for sharing!
***tried to find a previous post…. loved the color of your hair when you dyed it.
Thanks! Sending you hugs! xoxo
https://positivelivingwithms.com/sometimes-a-little-change-is-all-you-need/
thank you for the link 🥰
you’re a beautiful person inside & out
Regarding your urostonomy… Do you get frequent UTI’s with that?
Haven’t had any. Always had them with my SPC.
Thank you, as always.
Oh yes, the whole Randomness of MS is so frustrating!
It’s way too random. xoxo
Everything you said is so true. My life is changing again and it’s kinda scary. Coping with the changes and all this crazy weather doesn’t help. It’s hard to push the “MS” out if my day let along my body…..
Thank you for being here 🧡