MS Warriors are the BEST

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What an eventful month I’ve had. Thank you for sticking it out with me. I couldn’t have had any better warriors to fight along side me. Thank you for that. You are the best.

Since I’ve been home from the hospital I’ve had these crazy hallucinations that a nurse is at my house but when I try to get her attention she just goes away. I had my front door unlocked at the time and I just wanted her help to the toilet. I must have dozed off and poof, she was gone. My camera had no record of a visit. That happened two different times.

Then one time I thought my brother messaged me that he was going to stop by… I got out of bed and made my way to my recliner. Dozed off. No visit. What?

After that I decided I was going to keep my front door locked because anyone coming over would need to wake me up for a code. After I locked it, no more hallucinations.

I’m thinking it was due to all the meds I was on in the hospital and they were working their way out of my system. Thankfully I am now pain free from the surgery. I wish it was pain free from MS too. That would have made my day extra special.

But wouldn’t you know it, the best part of my day has been all in my head… kind of like MS. (grin)

One horrible thing has been my vision has become more blurred making it difficult to focus and even watch TV. Most of the time I just put on a show that I can follow without watching like a Marathon of ‘I Love Lucy.’ It gives me a smile just by listening.


Well, I’m your Vitavigavegivat Girl. Are you tired, run down, listless? Do you pop out at parties? Are you unpoopular? [pause] Well, are you? The answer to all your problems is in this little ol’ bottle, Vitameatavegamin. [Checks the bottle label] That’s it. Vitameatavegamin contains vitamins, meat, megetables and vinerals. So why don’t you join the thousands of happy peppy people and get a great big bottle of Vitaveatyvemeanyminimoe. I’ll tell you what you have to do. You have to take a whole tablespoonful after every meal. It’s so tasty too. It’s just like candy. [Takes a bit of time, if not too much, trying to sample the liquid.] Finally… [slurred speech] So everybody get a bottle of… [pointing at the bottle] This stuff.

Ready for surgery

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My bags are packed for a 6 day hospital stay. Not my choice of a resort stay but at least I will be taken care of while recovering from surgery on Monday morning. I have to be at the hospital at 8:00 AM, Feb 6th. Surgery will take about 2 1/2 hours. I will write to keep you updated while in the hospital. Don’t know what day I will post something but hopefully you will hear from my by the 7th.

I have to empty my bowels on Sunday starting at 2 PM. I have to down 4 litters of Gavilyte-G. Lemon flavored… and stay by the toilet so I won’t make a mess rushing to the bathroom. Ugh!

For those who don’t know my urologist has recommended the removal of my bladder and a stoma made with a part of my small intestines to empty my urine into a pouch on the outside of my stomach area. I won’t have any more stones to deal with. No more UTI’s. No catheters to change. Just a urine bag/pouch to change. It’s supposedly not be painful once healed. My urine will just be an open flow outside of my body. Kidneys will work the same. Just no bladder.

I’m a little nervous about it and hope I will heal quickly and learn quickly how to manage dealing with a urostomy bag. I’ve met with the nursing staff that will be teaching my after surgery how to manage everything. They are really nice and have already given me some products to play around with to get a little familiar with what I will be doing.

Keep me in your prayers. I will be doing the same for you. Hugs…