I can’t wish MS away
I feel like I was run over by a Mack truck last night. I’m exhausted, in pain and have become frustrated at dealing with multiple sclerosis every second of every day. I’m not really surprised though. I have sort of prepared myself for the unexpected. It is what it is… is what I tell myself all the time.
I can’t wish MS away or even think positively enough for it to disappear. Some people have said dealing with it is just mind over MS, haha. I doubt they have had any issues with MS to overcome or even MS itself. It frustrates me when people spout out how to deal with a problem that they’ve never had. Drive-by Antagonists need to get a new hobby.
One thing MS has done is taught me that I’m tougher than I thought possible. When something goes wrong, which it will, I tend to bounce back…not fall apart. I celebrate the small victories that I have.
Yesterday I had the energy to collapse several boxes that my new recliner came in. I used a box cutter (carefully) to dissect the boxes so they would be able to be picked up by the local garbage collection service. I think in doing so my body is paying me back because I overdid things a bit. I’m terrible at not listening to my body and always regret it later.
So far this morning I have been able to wash my face and make a cup of coffee. That’s a great start. I am not planning much for the day so I have time to recover. I know that sounds silly. Collapsing boxes is no big deal some would say. But my body says differently.
I’m not going to sit in shame for resting. I’m going to watch something fun on TV and rest in my new chair. It has been the greatest investment I’ve made in a long time. I like how it will stand me up almost entirely and allow me to easily transfer to my powerchair.
I’ve got a new project I want to start in my yard but I will wait for another time. I will just plan it out so when the time comes I will have everything I need to get it done. I just need to take my own advice and listen to my body when it’s talking. It really knows what it’s talking about.
1. Simplify your life.
so happy to hear about your new chair– ahh comfy and another win against the MS monster.
like you, i to overdo it, then pay for it the next day.
i get mad & grumpy at myself BUT i’m also so proud of myself for getting things done the day before .
big or small, in my opinion not anyone else’s, is a victory!!
I’m glad to know someone who thinks like me. 🙂
the pleasure is mine
So happy to hear about you’re new chair and you’ll enjoy it today while resting. Sharing your thoughts on this unpredictable disease is so helpful, whether we have had MS for a long time or we are newly diagnosed. Listening to our body is key. One step beyond and MS bites back!
It sure does. I don’t like the bite.
And celebrating every history, no matter how small it may seam.
Exactly. xoxo
Understand that! If I manage to get something done I need 2 or 3 days to recover from it…something my hubby doesn’t seem to understand!
And is the reason why I don’t seem to get things done. Just the battle of getting ready -tooth brush, face washed, getting dressed whew! That battle wears me out already!
I’m impressed by your battle with what you’ve done!
Aww… it’s really not that much. but thanks. xoxo
Small irrelevant jobs/tasks for the non MSers of the world are, to someone with MS, sometimes (or most times) something to celebrate. We get it because we live it! Celebrate your little successes regardless of what the world thinks AND if it takes time for you to recoup, just sit in your new comfy chair, relax, smile and shout as loud as YOU want because YOU DID IT! AND, you did it by yourself! Small things to others but HUGE victories for someone with MS. Now, celebrate and enjoy a nap in your fancy new chair.