I wake up each morning ready for a nap
I can remember a time in my life when I would stay awake for days just because I could. I pulled all-nighters at least twice a week for no real reason using the time to spend with friends, hang out at Steak ‘n Shake (the only restaurant in town open all night), and watch reruns of Doctor Who. Life was simple then.
I think sleep is paying me back now for all those hours we missed together. I find myself waking up in the morning ready to take a nap, and then when I do nap, I’m ready for another nap as soon as I get up from that one. It’s a weird and crazy cycle…sleeping to sleep.
As a kid I was always told we needed at least 8 hours of productive sleep. Lately, I’m lucky to get 8 hours productive awake time. I have been known to fall asleep in some of the oddest places too: at the dinner table as my head slowly drops into my plate of food (I haven’t done that in a while though), at the bookstore as I’m chillin’ in my chair skimming through a book, and even on the toilet just doing…well, you know.
My eyes will get heavy and I find myself thinking, “I just need to shut my eyes for a second.” But as soon as they shut I am instantly transported to another world. It’s a wonderful world, a place where multiple sclerosis doesn’t exist and anything can happen. I have been known to fly and have even tiptoed throughout the tulips and danced with leprechauns. One day I actually discovered I could dance better than Michael Jackson. Crazy, huh? Especially since I can’t even walk.
The only strange thing is that I can’t stay in that place for long. That’s why my life has become a continual daily life of nap, nap, nap with no sleep, sleep, sleep. I’ve been visiting there quite a bit lately; this land of nap. Maybe you have too.
And don’t feel bad if you are experiencing the opposite and can’t fall asleep no matter how hard you try. That can be just as miserable, but in a different way. Wow, a life with MS is as unpredictable as the weather. Sleep, no sleep…Ugh!
Just remember to be good to yourself through it all. Yes, you are that important.
I think my bed is calling to me. I can actually hear it humming my favorite song…Zzzzzzz. Me and sleep, sleep and me, we have become the best of friends.
1. Simplify your life.
Thank you for bringing this up, since many of us have sleep disturbances. There are days when I feel almost frantic to get just one night of more than a couple of hours of uninterrupted sleep. That would be heavenly.
You are so welcome Erin. People don’t really talk about it much. Uninterrupted sleep? What’s that? Ugh Thinking of you today! xoxo
Thanks so much for all the things you write about because it helps me realize i’m not CRAZY 🤪.. i had a terrible fall on may 2 broke my tibia plateau .. i was terrified having MS that i wouldn’t heal , thankfully i’m healing SLOWLY ..you keep things real it’s awesome thanks again ♥️
Ouch, your fall sounds painful. So glad you are slowly healing. That’s one of the worst parts of MS for me is how slow I heal from anything wether it’s a cut on my finger, acne breakout or and broken bone. That’s just not something people talk about. Glad you are one of my readers and that you appreciate how I tell it like it is. Love to you today…. Hugs xoxo
thank you for this and all your posts. sleep / no sleep
the struggle is real. no matter how much “sleep” i get, i’m always still exhausted 🥱. or i can get up, feel tired but functional and before i know it, i’m ready to hop back in bed.
your real life posts help me realize i’m not alone with the symptoms MS throws at me. xoxo
Thank you so much Bunny. I’m so glad they help… I say as I nod off. hehe Have a great day. xoxo
Hello there Penelope,
Hello too the land of sleep it’s a beautiful thing but can be inconvenient at times. I absolutely LOVE doctor who btw. I have 2 favorite doctors one from newer who and old who too. Patrick Troughton and David Tennant. Who is your favorite? I love reading too but I tend to fall asleep to it a lot too bc it’s so hard to stay awake for me 😪. Sleep can be cruel and a beautiful thing too. Wishing you well ❤️🩹. Hoping that you have great dreams but at convent times when it’s needed. Allonsy, it’s brilliant your brilliant
Love David Tennant as well. Kind of like Peter Davison too. Some were terrible, but I think those are my favorites. I will fall asleep trying to read. I just can’t focus that hard. Sending you lots of love over the miles and gentle hugs… xoxo