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You are not imperfect because of multiple sclerosis

All too often I hear people say they can’t do something because multiple sclerosis has caused their body to cease to function as it should. They see their body as imperfect because they are always doing something wrong. Their weakness keeps them from moving about as they need their body to function, their vision limits their ability to focus and maneuver their way throughout the day, their memory hinders their activities with failure to followthrough on much needed moments, and just showing up to an outing is too much work to handle so they decide to just stay home. That kind of life would wears on anyone.

I want you to know that you are not in this fight alone. Their are countless other MSers fighting along with you and leaving a trail of encouragement that will help keep you from being blindsided. We’ve got your back if you let us. I don’t know where I would be without such a great support system. It’s far better to try and fail than to never try at all.

I am reminded of a story about a woman who had two large pots, each hung on the ends of a pole which she carried across her neck. One of the pots had a crack in it while the other pot was perfect and always delivered a full portion of water. At the end of the long walk from the stream to her house, the cracked pot arrived only half full due to it leaking out.

For two years this went on daily, with the woman bringing home only one and a half pots of water. Of course, the perfect pot was proud of its accomplishments. But the poor cracked pot was ashamed of its own imperfection, and felt miserable that it could only do half of what it had been made to do.

After two years of what it perceived to be bitter failure, the cracked pot spoke to the woman. ‘I am ashamed of myself, because this crack in my side causes water to leak out all the way back to your house.’

The woman smiled, ‘Did you notice that there are flowers on your side of the path, but not on the other pot’s side? That’s because I have always known about your imperfection, so I planted flower seeds on your side of the path, and every day while we walked back, you watered them.’

‘For two years I have been able to pick these beautiful flowers to decorate my house. Without you being just the way you are, there would not be such beauty to fill my house.’

You are filling the world with much more than you think. Don’t underestimate who you are, what you can do even when limited, and how important you actually are. I just happen to think you are the bee’s knees!

Ready for surgery

My bags are packed for a 6 day hospital stay. Not my choice of a resort stay but at least I will be taken care of while recovering from surgery on Monday morning. I have to be at the hospital at 8:00 AM, Feb 6th. Surgery will take about 2 1/2 hours. I will write to keep you updated while in the hospital. Don’t know what day I will post something but hopefully you will hear from my by the 7th.

I have to empty my bowels on Sunday starting at 2 PM. I have to down 4 litters of Gavilyte-G. Lemon flavored… and stay by the toilet so I won’t make a mess rushing to the bathroom. Ugh!

For those who don’t know my urologist has recommended the removal of my bladder and a stoma made with a part of my small intestines to empty my urine into a pouch on the outside of my stomach area. I won’t have any more stones to deal with. No more UTI’s. No catheters to change. Just a urine bag/pouch to change. It’s supposedly not be painful once healed. My urine will just be an open flow outside of my body. Kidneys will work the same. Just no bladder.

I’m a little nervous about it and hope I will heal quickly and learn quickly how to manage dealing with a urostomy bag. I’ve met with the nursing staff that will be teaching my after surgery how to manage everything. They are really nice and have already given me some products to play around with to get a little familiar with what I will be doing.

Keep me in your prayers. I will be doing the same for you. Hugs…