A monster called multiple sclerosis
As a grown up, my monsters changed. They still try to scare me but in different ways. I have to be sure to keep my heart and mind protected from their scare tactics.
Author Archive for: penelope
Entries by Penelope Conway
When you gotta pee
Remember that you weren’t given an instruction manual along with multiple sclerosis, and you can only do the best you can with the information you have at the time.
I can’t wish MS away
I can’t wish MS away or even think positively enough for it to disappear. Some people have said dealing with it is just mind over MS, haha. I doubt they have had any issues with MS to overcome or even MS itself.
MS can cause memory loss
We live our lives in a crazy, seemingly unending fog due to multiple sclerosis. Fight through the fog, dodge the dizziness that happens, keep your focus on the end even when there is no end in sight.
A message to the disabled with MS
Having a disability can introduce a unique set of challenges that you have to go through and some you never even imagined you would be dealing with. There are certain things that I could have benefited from hearing in order to feel less alone.
Change your struggles into something positive
How can MS, something as simple as 2 letters, be so difficult? That’s beyond me. After all it’s just 2 letters in the alphabet. It’s not a sentence. But lately I would disagree. I’ve been put in solitary confinement, experienced sleep deprivation, dealt with torture by every ill acting nerve in my body and was even handed a restrictive diet of soft-foods-only due to a lack of muscle control. Ugh, what gives?!
Taking the easy way
Since I can’t just stand up like a healthy person, the help saves me time, energy and at lots of tears, so yeah… I’m taking the easy way. Live in my body and let me know if it’s really the easy way. It’s actually quite complicated… never easy.
To those not living with a chronic illness
Whoever you are, I fear you will never learn the injustices people living with a chronic illness endure all because they are facing the unknown and the unseen as their body is destroying itself from the inside out.
Positive affirmations that will change your life
Whether you’re dealing with stress, need a confidence boost, or simply want to give yourself a pep talk, positive affirmations are a powerful tool for rewiring your thoughts and shifting the chaos in your day.
Multiple sclerosis is your reality
You are finding yourself overwhelmed and challenged in every area of life, and you feel the weight of simply getting through today to be daunting.
1. Simplify your life.2. Watch your thoughts. What goes in, comes out.
3. Surround yourself with positive people.
4. Take time for yourself, even if it means saying "no" to others.
5. Be grateful, laugh and celebrate life.
6. Think more about what you have as opposed to what you don't have.
7. Help others.