Since MS has taken up residence in my body, I have discovered many things that affect me that never did before. It seems like symptoms show up out of nowhere and have a tendency to hang around for a long, long time… sometimes forever.
I try my best to stay active because I know there will come a day when my body will be limited in the things it can do.
Multiple sclerosis sweeps into your life and attempts to take you out. The destruction left behind can seem impossible to handle. Your life has become a moment by moment experience. Some moments are good, some bad and some are downright horrible.
As a grown up, my monsters changed. They still try to scare me but in different ways. I have to be sure to keep my heart and mind protected from their scare tactics.
Remember that you weren’t given an instruction manual along with multiple sclerosis, and you can only do the best you can with the information you have at the time.
I can’t wish MS away or even think positively enough for it to disappear. Some people have said dealing with it is just mind over MS, haha. I doubt they have had any issues with MS to overcome or even MS itself.
We live our lives in a crazy, seemingly unending fog due to multiple sclerosis. Fight through the fog, dodge the dizziness that happens, keep your focus on the end even when there is no end in sight.
Having a disability can introduce a unique set of challenges that you have to go through and some you never even imagined you would be dealing with. There are certain things that I could have benefited from hearing in order to feel less alone.
How can MS, something as simple as 2 letters, be so difficult? That’s beyond me. After all it’s just 2 letters in the alphabet. It’s not a sentence. But lately I would disagree. I’ve been put in solitary confinement, experienced sleep deprivation, dealt with torture by every ill acting nerve in my body and was even handed a restrictive diet of soft-foods-only due to a lack of muscle control. Ugh, what gives?!
Since I can’t just stand up like a healthy person, the help saves me time, energy and at lots of tears, so yeah… I’m taking the easy way. Live in my body and let me know if it’s really the easy way. It’s actually quite complicated… never easy.
1. Simplify your life.