I didn’t choose a life of constant struggle because of MS, but it didn’t give me a choice. I didn’t cause it, I can’t control it and I can’t cure it. Somehow it found me and here I am living in a world that is constantly changing. I don’t want to feel like a failure because of something beyond my control. I refuse to believe it will be because I didn’t fight hard enough.
AI is taking over the internet. It’s sad because websites are now built for bots, not humans. Everything I write is inundated with bots that consume the content for who knows what reason. The content is stripped and regurgitated into other none human writings.
This journey that we’re on — this journey called life — I know it’s not perfect. It has many hurdles and obstacles that keep jumping in the way. We can allow those difficulties to make us angry because our path has become hard and seemingly impassable, or we can choose to be thankful for the lessons we learn along the way.
This morning I woke up to a few mystery bruises. You know, those dark marks on your skin that appear overnight for no apparent reason. I have no idea who I was fighting in my sleep. Maybe an anvil fell on top of me in my dreams. Hey, it could happen. Anything’s possible, right?!
Most people don’t have to think about the things they are doing in life like answering the door when an unexpected visitor arrives until something like multiple sclerosis comes along and messes with our ability to do those things. Sure, we have to juggle things around in order to fit the sudden changes into our day and most of the time those shifts are not so simple to make. It’s that way with just about everything I do.
Emerging data suggests that extending a nightly sleep duration of people who habitually get insufficient sleep is associated with health benefits. My doctor has changed the dosage of Trazodone that I take to help me sleep at night because I told her the previous amount wasn’t helping as it did at first. Amazingly enough the higher dosage did help me get better sleep last night.
Penelope was 46 when she received the diagnosis that would change her life: multiple sclerosis. There were symptoms that started just days earlier of tingling in her fingers and parts of her face along with a frightening episode where her vision blurred for days. As a graphic designer and web developer who thrived on precision and creativity, she was devastated. She couldn’t imagine how she’d navigate a future with a disease known for its unpredictability. But as the years unfolded, her story became one of courage, adaptation, and an unyielding spirit.
Everything in the world is filled with so much negativity it’s getting harder and harder to keep a positive focus. Is that even possible any more? I happen to believe it is possible and being positive is doable.
There is an entire world filled with people who don’t understand multiple sclerosis. I know since you don’t live with the disease yourself it is hard to comprehend, but I hope what I have to say will help open your eyes and heart to what life is really like for me…hopefully giving you insight and understanding into the life of someone living with MS.
I wish you could live in my body for a day. You would quickly give up your degree in neurology. Oh, wait, you didn’t go to medical school. You got all your schooling from Uncle Fakealot and Dr Google. In that case, you need to fire Uncle Fakealot and even more importantly give up your university degree. 9 times out of 10 Dr. Google is WRONG.
1. Simplify your life.