When did society stop caring for the sick?

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There’s so much evil happening around the world that it makes trying to live a seemingly normal life an impossibility especially with multiple sclerosis added to everything going on. One thing that makes my world better is to not dwell on other people’s opinions about my own life. People who don’t actually matter to me. You know, like the stranger in line at the gas station, those eating at a restaurant that I’ve never met, the unknown person online with unfounded and outrageous opinions, even doctors and nurses that know my name but not really anything else.

If I wouldn’t invite someone into my house, I shouldn’t let them into my head. It’s sad really. As my health declines, my circle of friends have decreased with it. It seems that happens to everyone I talk to when it comes to living with a chronic illness. It’s easy to commit to helping someone for a month or two, but anything longer than that you become a burden to them and they find other things to take up their time.

When did society stop caring for the sick? It’s easy for someone to post a status online saying how much they care about others or share a picture of a bouquet of roses to say they care, but to actually get their hands dirty and physically do something is waining. You just don’t see that happening much anymore.

People seem to want to be recognized for something big by the world. They want the  press coverage and achievements hanging on their wall to show off their accomplishments to prove that they care for others. I’m just sitting here at home needing my trash taken out and can offer a hug in return. Not much. But a hug will last longer than any 15 minutes of fame. After all, a hug is eternal.

You seem to see all the crazed SJWs causing chaos instead. How is that supposed to be helpful for anyone? Turning on the news is more depressing than living in my mobility hindered world. Don’t just assume because I’m silent and not asking for help, that I’m okay. Most of the time I get tired of always asking for help and getting excuses in return. That’s why I simply quit asking. Sure, you can fault me for that. I should be more persistent in voicing my needs. But the flip side to that is when I am persistent, I get a defensive response that basically becomes an “I’m sorry I can’t help you today, I’m busy” reply.

My advice. Hang onto those that have proven their word time and time again. Shower them with thanks and gratitude as often as you can so they know that their work and help is needed, valued and appreciated. Get creative and come up with a back-up plan for all the other people that disappoint you. Sometimes I just want to be numb to it all but then I realize my thoughts, feelings and my MS story matters so I can’t hide away.

I have to focus on what I can control… giving of myself, my time, my efforts, my stories, and humor. The more I focus on my purpose, the less I give weight to what others think or say about me.

You might think you aren’t hurting enough. That there are people worse off than you and have been through more struggles. You may even think your story isn’t significant enough when you compare it to others and then the thought comes to your mind that people will think you are just seeking attention.

There is no measurement for pain, hurt and loneliness. No matter where you are in your life story or what it looks like, it means something. Your pain is important because it’s yours. Your story can help other people continue their stories. Yes, all pain is different. But there are things that we all share when the darkness comes and we feel hopeless.

You are a being. You exist. You breathe. You love. You fight. You hurt. You feel. And because of everything, because you exist, you matter.

Never let other people’s actions keep you from knowing how incredible you really are. You truly are an amazing person and not a burden. You may be living with an incurable, unrelenting, horrible disease, but you are AWESOME! Don’t you forget it!

3 replies
  1. Erin
    Erin says:

    What an amazing lady you are! I’m grateful that you share your thoughts and feelings with us.
    So many of us live with “garage” neighbors. We tend to use the garage door opener, drive in, close the door and never see or interact with neighbors. “Friends” are just acquaintances on the dreaded Facebook, and we only interact by leaving a “like” on their post.
    Thank you for pointing out that real relationships are meaningful, sometimes demanding, but so rewarding. It’s wonderful to see that you appreciate those who help you, when it would be easy to sink into becoming bitter.
    I hope you have at least one good friend who hears you and responds.

    Reply
  2. Vicky
    Vicky says:

    I really needed to hear this today. I have 1 friend I can count on when I need help and I do what I can for her in return. And hugs are the best gifts we give each other.

    It can get exhausting trying to do things for yourself and I have been feeling hopeless. Thank you for the reminder that we are awesome!

    Reply
  3. Tiffany
    Tiffany says:

    Penelope you my dear are absolutely AMAZING 🙂 🙂
    You always seem to say so much and you relate to my life in so many ways 🙂 YOU ARE A FEARLESS MS WARRIOR 🙂
    I love everything you post and don’t ever stop because you are so AMAZING in how you describe this dreaded disease and how to move forward instead of backwards!!! Now that is a WONDERFUL PERSON who can do that!!! I know I can’t lead people always forward… THANK YOU my dear Penelope 🙂 🙂 🙂 XOXOX

    Reply

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