Entries by Penelope Conway

Story of my multiple sclerosis journey

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Penelope was 46 when she received the diagnosis that would change her life: multiple sclerosis. There were symptoms that started just days earlier of tingling in her fingers and parts of her face along with a frightening episode where her vision blurred for days. As a graphic designer and web developer who thrived on precision and creativity, she was devastated. She couldn’t imagine how she’d navigate a future with a disease known for its unpredictability. But as the years unfolded, her story became one of courage, adaptation, and an unyielding spirit.

Thriving in an able-bodied world

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Julie lived in a world that seemed to hum along at a pace she could never quite match. Her legs wobbled like a newborn foal’s, her eyes blurred the edges of everything she tried to see, and her hands trembled as if they were caught in a perpetual breeze. Her thoughts, too, sometimes slipped through her grasp, leaving her frustrated and quiet. But Julie had a spark — a stubborn, glowing ember of determination that refused to be snuffed out by the challenges she faced.

An open letter – from someone living with MS

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There is an entire world filled with people who don’t understand multiple sclerosis. I know since you don’t live with the disease yourself it is hard to comprehend, but I hope what I have to say will help open your eyes and heart to what life is really like for me…hopefully giving you insight and understanding into the life of someone living with MS.

When opinions become facts

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I wish you could live in my body for a day. You would quickly give up your degree in neurology. Oh, wait, you didn’t go to medical school. You got all your schooling from Uncle Fakealot and Dr Google. In that case, you need to fire Uncle Fakealot and even more importantly give up your university degree. 9 times out of 10 Dr. Google is WRONG.

Multiple sclerosis tried to break me

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People look at me – at my past mistakes, burdens, heartaches, and even at the fact that I’m living with MS – and all they see are my cracks, scars and the shattered fragments of my life. Each one of those things makes you uniquely you. You are not broken…you are a beautiful example of how someone can push through all the junk life throws their way and rise above it shinning brightly. You are not broken…you are beautifully YOU… scars, imperfections, wounds, bruises, cracks, and all.