Shadows of Resilience
In the quiet of the morning, when light begins to breach,
There lies a silent warrior, with strength you cannot teach.
Multiple Sclerosis, a name whispered with fear,
Yet within its shadow, courage blooms, oh so clear.
Author Archive for: penelope
Entries by Penelope Conway
Here’s how to explain multiple sclerosis
Think of it like this: everyone’s body is like a unique puzzle, and sometimes, some pieces need a bit more care. People with MS are just solving their puzzle in a special way, and they can still play, learn, and have fun, just maybe a bit differently.
Comparing yourself to others is a losing battle
Stay focused on your goals and what you want for life. There is only one of YOU in this world, don’t waste time comparing yourself to others. Instead, make your life count. Striving to live a life that is authentic to your own personal goals.
GoFundMe Support for Positive Living with MS
I am Penelope Conway, the founder and writer of Positive Living with MS and I am raising money to cover the yearly costs for my website.
I’m a nobody
I’m a nobody. I’m just a gal with a laptop, a blog, an X account and a Facebook account. Nothing special.
I was diagnosed with multiple sclerosis in 2013 and went about looking for information about MS, the drugs used to help, and healthcare in general. Some of the things I learned were great, some not so much, but all of it beneficial.
There’s a flurry of weirdness going on in my brain
I spent my night with a random flurry of weirdness going on in my brain. My thoughts had no reason and made no sense. I have an overactive brain that just won’t shut up especially when night comes. It just feels so uncomfortable having a torrent of random weird thoughts and questions hitting me every time I try to sleep. I have realized the questions are so odd that most of them are unsolvable.
My body has limitations that aren’t negotiable
I can be so quiet about my struggle that people around me can forget they I’m hurting. This doesn’t mean I’m not having difficulties, it simply means I don’t want to bother them and keep saying the same thing over and over again like a broken record.
Something bizarre happened to me
Sometimes bizarre things happen with multiple sclerosis just because it exists. After all, we live with a strange, unpredictable disease. Some of the really strange things that happen need to be discussed more often so more people are aware of the challenges we face.
Today I choose to focus on the positive
In a world where violence, injustice, and despair seem to be everywhere, it becomes easier to expect bad outcomes rather than good ones. But today I am choosing to find positive things to focus on and remain hopeful that better days are coming.
I always say MS is a disease that keeps on taking
Many people don’t like talking about how much a person’s life changes when a diagnosis of MS comes along or how much their life is actually spinning out of control. It’s hard facing the MS monster at every waking moment
1. Simplify your life.2. Watch your thoughts. What goes in, comes out.
3. Surround yourself with positive people.
4. Take time for yourself, even if it means saying "no" to others.
5. Be grateful, laugh and celebrate life.
6. Think more about what you have as opposed to what you don't have.
7. Help others.