When opinions become fact
Knowledge can be powerful, but you can’t misinterpret a tiny glimpse of information about multiple sclerosis and then declare to the world that you know all about it… both the cause and a cure. Many people are even pushing their own products as support for their theories. It’s all a scam for get rich quackery. After all who else can make money today but the fakers and the takers.
Big pharma has been a great example. Push a product with no actual facts as a cure and people will buy it by the droves. No proof needed. Just spout off a few unapproved statistics and you’re gold… rolling in it that is.
To those online experts that talk about MS as if it’s cured I say…I wish you could live in my body for a day. You would quickly give up your degree in neurology. Oh, wait, you didn’t go to medical school. You got all your schooling from Uncle Fakealot and Dr Google. In that case, you need to fire Uncle Fakealot and even more importantly give up your university degree. 9 times out of 10 Dr. Google is WRONG.
But really, the internet isn’t what’s wrong. It’s people. We live in this weird period of time where people try to solve all of the world’s problems with bite-sized theories, unproven statistics and wacky medical solutions. Gone are the days of real knowledge. Opinions have become truth and everyone is an expert.
No one is wrong in how they go about living with MS. There are always things we could do better and new things to learn, but NEVER should we act as if we are the guru of all knowledge and wisdom regarding something as unknowable as MS and the human body, because we aren’t. Even doctors aren’t, they are all just practicing. That’s why their business is called a practice.
Don’t let anyone make you feel bad because they chose a different path than you. You be you and do what you know you need to do for yourself. You know your body better because you are the one actually living in it. Be unique, be crazy, make a mess, try new things, make mistakes, and even succeed…but most of all, hang onto the smiles around you and enjoy living.
There’s only one you and only one today, but there is a potential for lots of smiles to help you through this mess called life. Choose to find the smiles.
1. Simplify your life.
so true opinions vs. facts.
once had a pt mng dispute the FACT that heat can be a MS trigger. said he’s had MS patients and never heard of that.
even asked if i was sure i had MS!!
so i stated to him, just because you haven’t heard it, doesn’t mean it doesn’t exist.
on a positive note sent your
ABC’s of MS symptoms to my friend.
she was so greatful.
(she believes she might have MS)
we talked for hours about her symptoms ect… but mine are mine.
i’m not a doctor.
suggested she sees a neurologist ect.
the tone of our talk was so endearing, not dismissive, no judgment or diagnosis.
thank you for that information
w/ a splash of humor.
you’re an angel.
i wish you an amazing day full of smiles. xoxo
Years ago heat was how they diagnosed MS. They used the “hot bath” test. A person suspected of having MS was immersed in a hot tub of water, and the appearance of or worsening neurologic symptoms was taken as evidence the person had MS. Amazed people have never heard of that.
Oh wow!! I would drown if some put me in hot water. Just a few degrees up and I’m toast (no pun intended)
I would too!!! My breathing would also become labored. ugh
Great post. I adore the Emerson quote in the email.
It’s so true. Happens all the time today….
Let me never fall into the vulgar mistake of dreaming that I am persecuted whenever I am contradicted. ― Ralph Waldo Emerson
Love this! I used to have a dear friend who said that about Drs…they are just practicing you know, that’s why it’s called a medical practice…
How are you doing did the steroids help you? I’m considering that if Drs will get done
I’m doing okay. Have my moments, but mostly good. The steroids have helped with my weakness. Still weak but manageable. I like that.