The biggest thing I would like for people to understand is that every person’s internal “logic board” may connect all the same parts together, but somewhere deep inside where no one can see, there’s a malfunction in those of us living with MS that has disrupted the communication between our brain and our body.
Many things have become a challenge for me to complete. It’s as if each day, as I pull back the covers to get out of bed, I start my ascend to the top of Mount Everest.
I gave most of my shoes away when I discovered I could no longer wear them. My high heels… gone. Flip-flops… gone. Even my favorite tennis shoes… gone. All because I needed an AFO brace to help me walk on my own. That journey alone was heartbreaking.
I woke up in tears yesterday. No reason. Nothing bad happened to me in the middle of the night. I didn’t wake up from a nightmare, my goldfish didn’t die and I wasn’t in a lot of unbearable pain. My emotions just went haywire all on their own. I hate when that happens. I take meds to help keep my emotions stabilized, but yesterday’s dose must have been a dud.
People found an inspiration, reminding everyone that life, like the neurons in a human body, can find new pathways, new dances, and new songs to sing, even when the old ones fade.
There are resolutions we set all throughout the year: For a car or house payment to be made on time, for medications to be taken as prescribed, for being good to yourself… so many things. They are thought of more as commitments, but they are resolutions.
In the quiet of the morning, when light begins to breach,
There lies a silent warrior, with strength you cannot teach.
Multiple Sclerosis, a name whispered with fear,
Yet within its shadow, courage blooms, oh so clear.
Think of it like this: everyone’s body is like a unique puzzle, and sometimes, some pieces need a bit more care. People with MS are just solving their puzzle in a special way, and they can still play, learn, and have fun, just maybe a bit differently.
Stay focused on your goals and what you want for life. There is only one of YOU in this world, don’t waste time comparing yourself to others. Instead, make your life count. Striving to live a life that is authentic to your own personal goals.
I’m a nobody. I’m just a gal with a laptop, a blog, an X account and a Facebook account. Nothing special.
I was diagnosed with multiple sclerosis in 2013 and went about looking for information about MS, the drugs used to help, and healthcare in general. Some of the things I learned were great, some not so much, but all of it beneficial.
1. Simplify your life.