We are living with a forever disease
We live in a messed up world in a messed up body with a messed up disease, so when things get messed up around us…why are we so surprised? Don’t let the messes mess up your day.
Author Archive for: penelope
Entries by Penelope Conway
I was born a fighter
I may not wear a cape,
have my initials emblazoned across my chest
or leap tall buildings in a single bound
but I do wear pajamas even on my good days
and fall faster than the speed of light.
Don’t judge, that’s just the tools I have to work with.
The struggles dealing with multiple sclerosis
I call the struggles we go through in our life with multiple sclerosis “storms.” Storms because although they have the potential to turn our lives upside down, send everything into chaos and create massive devastation, they never last forever. Every storm has an end, no matter how fierce or destructive it may be.
The choice is yours
When was the last time you struggled with a choice? Maybe it was at the doctor’s office looking over different MS treatment options.
Are you feeling better?
I don’t know if people realize how difficult being asked “Are you feeling better” is to answer. Am I feeling better than what? How I was feeling yesterday? Last year? Five minutes ago?
Yes, Multiple Sclerosis Is Real
Most days it seems I am fighting a never-ending battle. There are times I wake up thinking all is good and that the spinning is gone, but as soon as I get up and start going about my day…boom, it’s back.
A life with multiple sclerosis isn’t easy
I have never climbed Mount Everest but it seems like every day I scale its twin. Somehow this twin of a mountain is in front of me as soon as I open my eyes to start the day.
Living with MS you have to make a choice: Fight or Give Up?
In this crazy mixed-up world I can’t stop thinking about all that has to be done just to hold our heads up. Between health issues, worldwide troubles, unpredictable wars, economic downward spirals… where can you turn to remove yourself from all the chaos and really do you want to?
Are you going to let the fact that you have to crawl through the trenches just to get your day started cause you to wave the white flag of defeat? Are you going to let the opinions of others and their negativity keep you from advancing?
Vision problems and multiple sclerosis
My eyesight has been giving me more and more trouble lately. When I wake up in the morning it takes me more time than usual to properly focus. I will prop myself up in bed and have to rub my eyes countless times just to see straight.
Today I didn’t grieve for my health issues
How many days do I get up in the morning and say “Maybe my hands will work for me to get dressed without difficulties. Maybe I can get through my morning without a bathroom mishap. Maybe the pain in my body is manageable and doesn’t interfere with my quality of life. Maybe multiple sclerosis will behave and allow me to run some much needed errands.”?
1. Simplify your life.2. Watch your thoughts. What goes in, comes out.
3. Surround yourself with positive people.
4. Take time for yourself, even if it means saying "no" to others.
5. Be grateful, laugh and celebrate life.
6. Think more about what you have as opposed to what you don't have.
7. Help others.