Navigating the world of multiple sclerosis

I’m in need of a multiple sclerosis GPS. It’s a device that gives you clear directions on how to navigate the unknown world of MS, if that’s even possible, but it’s so unknown that even the GPS gets lost so I’m not sure how that will end up working out.

Not only will it tell me how to get there when I enter my destination, it will remind me why I went there in the first place. You have no idea how often that happens. I will circle the kitchen looking for something but forget why I even went in there to begin with. So frustrating. It’s an opportunity for me to just go back to bed. I need a nap after everything strenuous I do and thinking is strenuous.

At least I can have it turn on closed captioning to get written words with all the conversations I engage in. I use it while watching TV because many times spoken words don’t make much sense to me and having something to help me understand what’s being said really helps. I noticed that I tend to lip read even in real conversation with others… it helps.

An MS GPS will help me find the nearest bathroom when I need to go. Yeah! The only bad thing is that sometimes it doesn’t get me there fast enough to get my pants down and accidents happen. Just yesterday I pooped in my pants because I could get them down fast enough. At least the shower was right there and I was able to clean up quickly without too much trouble.

In the future, an MS GPS will be able to predict falls which would be so revolutionary. Ex. In 2 paces you will fall… so don’t go there. Rerouting. Don’t go there either. Rerouting, rerouting, rerouting…

Falls are predicted everywhere. The bad thing is that I went there and met the floor first hand. It’s just a lonely and unappreciated surface of the world so we hung out and I showed it some love.

Since my brain sends mixed up signals I think an MS GPS would be whacked-out. Oh, the wacky places we would go. Sometimes I just don’t know what I’m doing and at least we can not-know together.

If and MS GPS systems will make my work more productive, safer, and easier… good luck with that. MS has already robbed my brain of those capabilities.

Clive Whiteside says:

October 12, 2023 at 7:19 am

Thanks for sharing this with everyone I’m sure that many people will relate to what you say in this post and having a GPS that will give you the location of the nearest bathroom/ toilet etc is something that could be very beneficial